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dermatitis herpetiformis

Suenthe4cs

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Suenthe4cs Newbie
Suenthe4cs
Posted

Hiya I'm new to this page I've recently been suffering from recurrent ear infections and the ent doctor has said it is related to a skin issue, but I have been suffering from an itchy blistery type rash that after some research I'm wondering if You think it could sound like dermatitis herpetiformis? It's itchy and blister like.. But mainly in scalp on hair line or chest 

I do have other symptoms of celiac disease I have had low b12 but - intrinsic factor when tested for 6 years now although have a family history of pernicious anaemia, bloating gas brain fog etc.

ive had a blood test for antibodies this week but was negative but when I do finally see a dermatologists is it worth askin them to test ?

thanks

 

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captaincrab55 Collaborator
captaincrab55
Posted

Make sure you chose a Dermatologist that is actively treating patients with DH.      I saw 4 Dermatologists in 30 years before I found one the would listen to me and knew how to test for it.    The test takes 2 weeks for tissue results.    

GFinDC Veteran
GFinDC
Posted

Hi, yes, it won't hurt anything to get tested.  They test by taking a small biopsy sample of skin next to a blister/lesion, and analyze it for IgA antibodies.  At least I think that's right.  There is more info in the dermatitis herpetiformis section of the forum.

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    • trents
      Dermatitis Herpetiformis

      By trents · Posted

      I would hesitate to recommend tetracycline or any antibiotic as a long term therapy option because of the negative impact it has on the gut biome. I took it for years as a teenager for acne and I'm convinced it was a contributing factor in my having developed celiac disease.
    • knitty kitty
      Dermatitis Herpetiformis

      By knitty kitty · Posted

      Welcome to the forum, @Pamp8, I stopped foods high in iodine, like dairy and eggs, kelp and iodized salt.   I take Niacinamide also called Nicotinamide or Vitamin B3.  I haven't taken the tetracycline with it.   It seems to make the blisters disappear quicker. I also use tallow balm, a cream made from beef fat, which has been used for thousands of years.  It is absorbed into the skin better than creams made from plants.  It helps prevent or lesson scarring.  See the study below. Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide "The combination of tetracycline and nicotinamide can be recommended as a useful therapy for patients where dapsone is not available or for patients who do not tolerate dapsone." https://pubmed.ncbi.nlm.nih.gov/30390734/
    • Scott Adams
      Newly diagnosed, struggling

      By Scott Adams · Posted

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      foods

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