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Hair vitamins

Thesummer

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Thesummer Newbie
Thesummer
Posted

Hello.. I am new to this forum so I am not quiet sure if I am doing it right. 

I've had Celiac since Summer 2012 I live in the middle east where people don't take what I have seriously. I've had an okay doctor until I realized that she did not tell me I have UC until I was told by another doctor anyways I never used to take medication because I didn't feel the need to recently I started taking Asacol a lower dose from what my doctor prescribed because I don't have a lot of hair and after taking Asacol it's making my hair fall much more than before my eyebrows are thinning and my eyelashes as well which is upsetting me so much I tried Pentasa same thing.

I know Biotin makes your hair grow and makes it thick BUT for some reason they don't sell it here anymore and I cannot order it online I don't know if its harmful or what is going on exactly. I used Hait Vit for sometime and it was great but now it's not working for me even though it says that it gluten free I'm guessing it's not. Priorin is also a good vitamin for the hair but it's not gluten free. I don't want to stop taking my medication because of my hair but I'm desperately looking for a solution I'm 24 years old and I barely blow-dry my hair I don't know if anyone tried PRP and if it's any good? and If there is another gluten free vitamin supplements that I take? hopefully that i can find here.

 

Thank you 

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SLLRunner Enthusiast
SLLRunner
Posted

Hi Thesummer,

I don't have answers to your question, but I wanted to welcome you!  

Even here in America, celiac is difficult to diagnose and often not taken seriously. 

Is "UC" ulcerative colitis?  Have you spoken to your doctor about the medication making your hair fall out?

Thesummer Newbie
Thesummer
Posted
  • Author

Hello SLLRunner

Thank you that's very sweet I'm really thankful for this website.

Yes I did, I search about it and I found that Mesalazine can cause hair loss (Mayoclinic) and I told him but he doesn't think it's that of a big deal. I've seen a few dermatologists they gave me shampoos ,conditioners and hair serums but they make my hair feel terrible or suggested I try PRP which costs 530$ a session I need 4 to 6 thats if it actually works I read mixed reviews about it.. wouldn't want to spend money on nothing you know..

I also wanted to note that I've been checking all the hair products if they include any gluten ingredients and as far as I know they don't.

Yes, UC is Ulcerative Colitis and I have Celiac.

 

Thank you again 

tech-writer Newbie
tech-writer
Posted

I take Viviscal Proffessional, which was suggested by dermatologist here in the US. I buy it on Amazon. While it hasn't helped with the main hair loss, my eyebrows and eyelashes are growing back. Hopefully my hair will start growing back at some point as well.  Good luck with your search.  I understand how distressing this is. By the way, it is gluten free and one of the ingredients is Biotin.

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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