Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wheat sensitivity but not Barley?


atheresa

Recommended Posts

atheresa Rookie

I drank a couple of Best Damn Root beers before I realized they were not gluten free. They are brewed with barley. I have been gluten free 2 1/2 years now because I have bad gastro problems, migraines and depression when I eat wheat. I was just wondering if it is possible to be only reacting to wheat and not barley, or what might be going on. Is it possible I could drink real beer and not have any side effects? I wanted some opinions before I go for a trial run that could ruin the next couple of days.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Do you have Celiac disease?  If you do than, NO, you can't drink regular beer, etc.  not reacting to the barley was just lucky.

If you don't have Celiac....why not?  Maybe you don't need to be gluten-free at all.  Maybe whatever your issue was has resolved itself.

 

 

 

 

atheresa Rookie
9 hours ago, kareng said:

Do you have Celiac disease?  If you do than, NO, you can't drink regular beer, etc.  not reacting to the barley was just lucky.

If you don't have Celiac....why not?  Maybe you don't need to be gluten-free at all.  Maybe whatever your issue was has resolved itself.

 

 

 

 

I don't have celiac. I just know that when I eat gluten I get migraines, depression and diahrea. Any time I have been accidentally been glutened in the past 2 years, I have a couple of really bad days. Also, my energy level has increased without gluten. Is it possible for a gluten sensitivity to resolve itself? That would be amazing news. I would love to go back to eating regular foods but I have not heard of that happening. I just wondered if anyone ever heard of anyone that was just sensitive to wheat but not other grains.

 

Jmg Mentor

Hi Atheresa,

Take a look at this page: Open Original Shared Link

It outlines not only celiac but other ways in which wheat or gluten can affect people and suggests that some can eat barley, rye etc without suffering the same effects. (Gluten is the protein within wheat. For Celiacs the protein in Rye, Barley, Spelt and Triticale are similar enough to gluten to cause a reaction.) 

Quote

 

People with wheat intolerance will still experience adverse symptoms from gluten free products, as the remaining part of the wheat will be affecting them. They may, or may not, be able to eat rye, barley and oats, that are part of the wheat family and, as with many other food intolerances, may be able to reintroduce wheat back into the diet after a period of elimination.


 

If your doctors have clinically excluded Celiac (very important) and you just want to avoid ill effects that you experience then it sounds like you aren't reacting to the barley, so maybe it's ok for you.  There are those who think that a gluten sensitivity may be reversible perhaps by exposure to degraded gluten protein:

Open Original Shared Link

Quote

For those with a less severe reaction, with what Pollan calls “gluten intolerance”, which is more commonly known as non-celiac gluten sensitivity, the sourdough process may increase tolerance for consuming the bread, says Alessio Fasano, 

I would sound one note of caution. I had negative blood test and biopsy, my GI told me to avoid gluten based solely on my reactions to it. So I'm not celiac. However, about a year or so into the gluten free diet I reacted to a relatively small amount of barley malt in a cereal product. So either I have latent celiac which went undetected under biopsy, or it's possible for non celiac gluten intolerant people to react to barley as well as wheat. 

Ultimately we all have to make our own decisions. I have enough correlation to keep me strictly gluten free for life. But there's clearly a wide variety of folks out there and maybe you're lucky enough to be able to consume some previously forbidden foods without ill effect. Just be very sure that celiac is definitively excluded or you could be incurring very serious damage, even without perceptible symptoms.

One final link (trigger warning - includes delicious looking beer :( ) 

 

Best of luck! :)

 

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.