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1st glutening! Is this normal?

Mnoosh

By Mnoosh
in Coping with Celiac Disease

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Mnoosh Apprentice
Mnoosh
Posted

I'm a newly diagnosed celiac, just about two months into recovering. I was feeling soooo much better and my bowels were almost back to normal. Well...then my husband and I went out to eat this weekend to celebrate our 10 year anniversary. They seemed very knowledgable and concerned with cross contamination. About 15 hours later I got incredibly sick (cramping, bloating, and really, really bad diarhea). After about 12 hours of the worst diarhea I've ever experienced, I realized that our Imodium was gluten free! This stopped me from going anymore that night or the next day-I was so excited thinking I had turned a corner. However, once the medicine wore off the diarhea came back. So I guess what I'm wondering is-does anyone else experience extremely bad diarhea for days after a glutening? It's alarming! 

P.S. I'm eating really a gentle diet to hopefully heal ?

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Irene Joanne Explorer
Irene Joanne
Posted

For me it was better after a week. It's not fun! Get lots of rest. I don't have a lot of advice- I was diagnosed almost a year ago. For me, I'm vomiting also for the first day. I'm getting to a point where I rarely eat out- it's too stressful even if I don't get sick.  It took me almost 3 months before I really felt better. 

icelandgirl Proficient
icelandgirl
Posted

Hi Mnoosh...yes, that's what happens to me.  The first time I was glutened I had eaten out and they seemed knowledgeable too...but alas I was so sick.  For me, it took 3 weeks to get back to normal BMs the first time.  It stinks, but it's true.  I was glutened in June and this time the D only lasted about a week, but other symptoms lasted longer.

It can be very hard and discouraging getting glutened, but you will feel better.  Keep eating soft, gentle foods that are easy on your system.  My go to is chicken breasts cooked in the crockpot, rice, boiled potatoes, we'll steamed carrots, etc.  These are easy on my system and give me some nutrition.

I hope you get to feeling better soon!  Try some peppermint or ginger tea...they are very soothing as well.

Hugs!

dustinhxc Newbie
dustinhxc
Posted

First time I was glutened I had horrible diarrhea. I've been fine for awhile. Then 3 weeks ago I was glutened and vomited and had diarrhea. Now 1 week ago I was glutened and vomited again. Had diarrhea the first night and then have been constipated and nautious for a week. Took fiber and it helped. Hopefully the nausia ends soon. I think I'm getting very sensitive. 

Ennis-TX Grand Master
Ennis-TX
Posted

Last major straight gluten exposure for me was in June, went out with a friend to celebrate and they said the chicken was gluten-free. Seemed to have a sauce on it but I ignored it and had a tiny bit in my salad. Within minutes I had a feeling in my mouth, sores, and my lymph nodes started hurting. I knew then but it was going to be bad later, few hours later I am on my floor at home in the door way, I was puking, dry heaving and heavy cramps, and so dazed I just laying there in the door way complete out of it dazed. Spent the next 6-8 hours like that, heart rate dropped to 32-38bpm at one point and turned completely white according to my friend who was watching over me. Spent the next week just out of it, numbness was back to its worse, (finger tips lack surface feeling and tend to fumble stuff and burn my hands cooking and not notice it). Following next couple of days where odd bloody stools. .....I normally end up binge eating almond butter, protein powders, and coconut afterwords to get my weight back up and keep it on. BCAAs also seem to help with recovery and soreness

Mnoosh Apprentice
Mnoosh
Posted
  • Author

Thanks for sharing your experiences. It's good to know that this is somewhat to be expected. Do you all take anti-diarrhea meds or just let things run their course after glutening?

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

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      Son's legs shaking

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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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