Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Six months in - so many food intolerances, can hardly eat anything


strawberrymoon

Recommended Posts

strawberrymoon Apprentice
On 03/11/2016 at 7:55 PM, Jaemac said:

Hi Strawberry,

I've tried making bone broth and I didn't think I was very successful at it until just last week when I bought some commercially made bone broth (It's made locally here for our grocery stores and is authentic with no additives) and this stuff tasted just like what I had made. I thought I'd made a mistake as mine tasted like dishwater. Well that seems to be what it's supposed to taste like, not like chicken broth, lol. If you make it just know it won't add flavor to your potatoes it will add nutrients though. 

Also, I didn't know you were a vegetarian. As I assume you have trouble eating beans (as do most people, i mean we all know the jokes about beans) are you sure you're getting enough protein? What is your main protein source? If it's soy/tofu, you may want to explore that this may be one of the things making you ill. Soy can be really controversial. I looked up some of the symptoms of not eating enough protein, they are below.Oh, and if you're having trouble with the milk in butter you can make it into Gee which essentially involves melting it and skimming off the milk proteins to then it won't bother any lactose intolerance you may have. Just look up how to do it. Gee can also be purchased if money isn't a problem for you. Then you'd be able to add flavor to your potatoes. If you want to try a good chicken broth the one I use is called Better Than Bouillon and it's fantastic, it's pricy and does have a fair amount of salt but it salt isn't your problem then that may be a way to add flavor to your potatoes too, just make the water into a chicken broth and the potatoes will absorb it. The company also makes vegetable broth but I like the chicken better, lol. Hope the info below helps.

Eating too little protein can result in these symptoms as well:

  • A sluggish metabolism
  • Trouble losing weight
  • Trouble building muscle mass
  • Low Open Original Shared Link and fatigue
  • Poor concentration and trouble learning
  • Moodiness and mood swings
  • Muscle, Open Original Shared Link
  • Blood sugar changes that can lead to diabetes
  • Slow wound healing
  • Low immunity

Hi jaemac, I've heard a mixture of things about bone broth, a lot of what I've read seems to say it tastes nice.  I'll give it a go this week and see what happens lol

I haven't eaten meat for 31 years but there's been a couple of times when I've seriously thought about having some.  I'm starting to feel like I might not have any choice soon.  I can't have soy/tofu, to be honest I don't think I'm getting much protein, if any, and I do have some of the symptoms you listed apart from trouble losing weight!

I didn't realise butter might be okay.  I had a big problem with cheese so cut all dairy out a few months ago.  I'll try some butter and see how I get on with it. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



strawberrymoon Apprentice
8 minutes ago, Ennis_TX said:

Note Nutritional yeast is not the same as a active yeast/bread yeast....I can not eat anything with yeast in it. Nutritional yeast is different and safe for most people who can not eat yeast used in breads etc. It is inactive, and for me does not cause any of the issues I get with normal yeast. Do some research into it might be worth a try.

 

I didn't realise that, thanks.  I'll look into it.

strawberrymoon Apprentice
On 05/11/2016 at 1:31 PM, Rowan13 said:

Hi,

Just wondering have you looked into oxalates and oxalate levels of foods that bother you? I've discovered that the high and very high levels of oxalates in some foods seems to make me sick. I've learned that if I stay under a certain level of oxalates per day it is better for me. Open Original Shared Link

This is the main site I learned a lot about it and also the associated Yahoo group/forum. I've already realized I'm reacting to Salicylates, histamines and a lot of other stuff. Like you I get down to only a handful of foods but I've managed a few times to get somewhat better by checking to make sure I'm not ingesting high levels of of any of these components. However, I didn't understand gluten & dairy was making me sick and kept regressing. I at least have more awareness that for example spinach has massive amounts of oxalate & steer clear. (Though I loved spinach as a child) Oxalates build up in the system and if you consume more in a day than you can break down it can make you feel very ill, poisoned almost and cause a lot of side effects.

What seems to help me a bit is magnesium salt baths, but not too much! I even react to too much of that. Also dead sea salt mixed with the magnesium. My fav brand is Ancient Minerals flakes which I order directly from their site. Also drinking plenty of water and I like Smart water, distilled water sometimes and less often spring because that can make me feel sick too. Getting out in the fresh air can help but when I'm really sick even that can make me feel worse. But I feel my lessening of exercise and being in the outdoors (because of being sick & other stresses) has contributed to my getting sicker. (A catch 22)

Using google calendar or something like that is helpful for me to keep track of when I've been sick, what i ate, etc.  Even if I can just write a few sentences later I can look back and possibly see a pattern. I know now I can NOT drink coffee anymore. At least not for now. Staying up late on the computer strains me too but I admit I still do it because it also cheers me up. But I know if I overdo that it affects me in the next few days. Bone broth made me feel awful but I don't know why. It seems any time I boil or simmer something for a long time it doesn't make me feel well.  And finally, you probably know it already but the Open Original Shared Link website is quite good for supplements, special food products & other pharmacy type products. I also like this companies products, Open Original Shared Link especially the Sensitive probiotics. (But I've only just gone gluten free so I'm not at all sure that that product is safe.)  Sorry for this mish mash.  Best wishes.

 

Hi Rowan, I did read something about oxalates a while back and meant to look into it more.  It sounds like this could be part of my problem.  I'll look into it again. 

Like you I can't drink coffee anymore, but feel better for cutting it out. I also tend to stay up late most nights which probably isn't doing me much good.  I stopped exercising a few months ago so I should probably start that again.  I've noticed anything I put in the blender seems to make me feel ill, it must be something to do with the way food reacts depending on how it's cooked I think, I can't think of any other reason.

Thanks for this and the links I'll have a look at them.  I hope things improve for you soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.