Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dealing with Symptoms in College


eturnquist

Recommended Posts

eturnquist Newbie

I am a college junior and was just recently diagnosed with celiac disease in June, two months before I went back to college. I was feeling great initially, but now I am living with 3 people who are not gluten free, and so I have been having issues with cross contamination. I've been trying to pinpoint the cross contamination, but sometimes my roommates use utensils or contaminate my food when I'm not there because they just don't think about it. Does anyone have any tips for avoiding cross contamination?

Also, I've been dealing with symptoms off and on for about two weeks now. Diarrhea, fatigue, brain fog, achy joints, all of it. I've really been struggling attending classes and studying because I feel so sick all the time. Although some teachers are accommodating, some just don't understand and think that because I look fine, I must be fine. How do you deal with symptoms in college and does anyone have any tips for overcoming the symptoms?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Taras Light Rookie

Hello eturnquist,
Sorry you are being cross contaminated! 1st I would suggest you keeping your cookware in your own room. Better safe than sorry because cross contamination still causes damage to your body, which makes healing take that much longer all over again.
2nd, take care of yourself after being sickened. Rest as much as you can, even sleep, because it gives your body less to deal with while healing. Water will be a good friend too if you don't drink enough.


I relate to you with the brain fog being in college. Same here. Things take like 2 days longer than they should some times because my brain wont work.

GFinDC Veteran

Hello eturnquist,

I live with 2 people who are pretty gluten unaware.  There is plenty of gluten everywhere.  So I assume any dishes or silverware might be contaminated.  Quick rinse is all it takes to clean a little flour off.  I keep most of my food in a separate large dorm size refrigerator.  That is simple and works well.  If you take a little extra effort you should be fine.  I generally avoid the kitchen when pies, or bread etc is being baked.

Ennis-TX Grand Master

Freezer Paper you prep surfaces, use your own cooking appliances, your own fridge, and disposable plates and utensils when you can. Keep a stash of gluten-free Safe snacks like from GERBs or Enjoy life around for munching. Wash your hands before cooking or eating anything, gloves might help with this. And a safe meal replacement shake to take with your if you need for emergency safe meals while out in a shaker bottle. Call me paranoid but when you got to get stuff done you have to take a bit of extra precautions to avoid getting sick. Perhaps drill into your roommates about your issues, they might be emphatic and work on your with compromises or ground rules about keeping things in certain areas.

  • 1 month later...
rugenzj Newbie

Hey man, im a Junior in college living in a fraternity house, as you can imagine its not easy.

I keep all my plates and silver ware in my own room and wash everything in the sink myself.  That way i know its clean and i don't have to worry about anything. I can clean everything right when i'm done using it, let it dry, and be done with it.

Be careful with people drinking out of your drinks or drinking out of other peoples drinks. that can cause a lot of cross contamination. 

as for the symptoms, i've typically dealt with everything through the liberty of using cannabis, provided by my roommate.  as many would not suggest this method, it does help make your stomach feel better, and sometimes let you sleep everything off.  i know thats probably not what you wanted, but thats my honest opinion. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.