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No change in TTGA in 4 months


Blackjackmark

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Blackjackmark Newbie

Got Dx in mid-August from both a small intestine biopsy and blood work sent to Mayo Clinic. Value of the Tissue Transglutaminase Antibody, IgA was >100 in August, and is STILL >100 over three months later.

I've studied all the literature about sources of gluten, and have scoured every food label for any traces of wheat, barley, malt, rye, etc. I cook most of my own food, but when I do eat out, I'm being very particular about only dining out where I know they have a dedicated fryer and/or follow a great cross-contamination protocol.

How long does it typically take to see results? My value hasn't budged in 16 weeks.

 

 


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RMJ Mentor

It might have gone down, you can't tell because the first result was >100.  It might have been 200 or 300 and now 101.  I'd give it more time.  Do you feel better?

Blackjackmark Newbie
On 12/13/2016 at 7:07 PM, RMJ said:

It might have gone down, you can't tell because the first result was >100.  It might have been 200 or 300 and now 101.  I'd give it more time.  Do you feel better?

I feel exactly the same...meaning I feel fine. I have none of the signs of celiac, and the only way it was discovered was in chasing the cause of chronic ear infections due to "silent reflux". So they scoped me to check that out and found the celiac. So I evidently have silent celiac in addition to silent reflux! ???

jerrycho Apprentice

For me, TTG IgA went down fast.  But Anti Gliadin slower.

Keep at it on the diet.  I am starting to see some improvements in my muscular pains only after a few months.

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    • RMJ
      I agree with @trents, they should have run a total IgA.  What was the normal range for the DGP IgA test?  Different labs use different units thus have different normal ranges.
    • Churro
      Thanks for your assistance. 
    • trents
      Get your total IGA checked to make sure your celiac antibody test scores are trustworthy.   
    • Churro
      I do eat 4 slices of wheat bread with almond butter. Yes it was a reference to my iron consumption. 
    • trents
      To give you a frame of reference for pretesting gluten consumption necessary to ensure valid antibody testing, here is the current recommendation for those who have been on a gluten free diet: The daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks. Not sure why you mentioned eggs and chicken. They are not sources of gluten. Was that in reference to dietary iron consumption?
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