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Fatigue - Where does it come from?

Nikkiann

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Nikkiann Apprentice
Nikkiann
Posted

Hello! Just a quick question for thought. While I am fatigued often, my blood tests show zero deficiencies and great levels. I am not sure scientifically where the fatigue comes from if it isn't a malabsorbtion problem or something like that. 

 

Nicole

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Mermaid's Mom Enthusiast
Mermaid's Mom
Posted

I am certainly not as educated as many on here regarding these issues but I am slowly learning...

Having said that...from what  understand Magnesium levels are hard to ascertain because it is stored in the bones.  But a deficiency can cause fatigue.

Also a lot of these issues cause insomnia and poor quality of sleep.  Would you say that you sleep well?  Meaning fall asleep easily and wake rested?  If not you may not be getting good quality sleep?

Ennis-TX Grand Master
Ennis-TX
Posted

Fatigue can be caused by many different things. Most common ones are a CC issue with gluten, a intolerance to a food or a allergy causing it, or a deficiency. Issue with deficiencies is we are all different, some of us have bodies that require a lot more then the recommended amount and less of others. I for one require 3x the dose of magnesium and 2x the dose of B vitamins, niacin, and iron to operate like a semi normal human. I go below these and I just want to laze around and sleep all day. I also find I have to stagger my doses throughout the day to maintain a even level and avoid slumps. Try supplementing and adjusting your doses on these to see how you feel, it took me months to get my regime down.

You might also have a digestive issues where you body is bogging down with something either due to a enzyme issue or intolerance try taking a probiotic, digestive enzyme, and playing with your diet for a bit. Perhaps drop of the common culprits like dairy, grains, oats, etc and try a week without them, Perhaps try paleo with just fats and protein for a week, might be a carb issues, or might be a issue with meats. Who knows we are each different and you have to find what works for you. I wish you luck finding your path and building a regime for your better health.

Nikkiann Apprentice
Nikkiann
Posted
  • Author

Thank you to both of you! I will try to play around with those things!

cyclinglady Grand Master
cyclinglady
Posted

Thyroid disorders are common with those who have celiac disease.  Being hypothyroid can cause fatigue.  Anemia is another cause for fatigue and is very common for this with celiac disease.  Have those two issues been ruled out?  

Nikkiann Apprentice
Nikkiann
Posted
  • Author
On 3/24/2017 at 11:39 PM, cyclinglady said:

Thyroid disorders are common with those who have celiac disease.  Being hypothyroid can cause fatigue.  Anemia is another cause for fatigue and is very common for this with celiac disease.  Have those two issues been ruled out?  

Yes! They have been ruled out. All my nutrient and hormone levels are good!

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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