Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intollerance seems to get worse after time abstaining


Alex|xelA

Recommended Posts

Alex|xelA Newbie

Hi there, I'm new here but thought this would be good place to ask for advice. I gave up gluten a few months ago after an interesting interview with Jordan B Peterson. Linked below.

i was also amazed to have had similar results I have had long term depression for as long as I can remember and after giving up gluten it just slowly went away, which of course was amazing but also quite disorientating being such a big change. I also noticed that my temper completely disappeared too which was interesting, I would still get annoyed but it just didn't escalate at all now and instead pleated. I also had bad acne that persisted into my late 20's which for the first time in my life is gone, people with good skin cant appreciate just how nice it was to go a whole week without getting new spots.

Anyway, the question I wanted to ask isnt really related to this stuff, but I have noticed that if I reintroduce gluten now (breadcrumbs are a compelling vice for me) then I will have inconsistent issues in the bathroom, also my stomach would also make gurgling noises etc. What I don't understand is that I have never had any of these kinds of issues before, my physical health is and always has been flawless, no health conditions in any of my extended family, bar mental health perhaps and my diet is very healthy and balanced. What I don't understand is why I seem to be more sensitive to gluten than I was originally?

Thanks if you actually bothered to really all of that.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor
On 4/5/2017 at 4:38 PM, Alex|xelA said:

Anyway, the question I wanted to ask isnt really related to this stuff, but I have noticed that if I reintroduce gluten now (breadcrumbs are a compelling vice for me) then I will have inconsistent issues in the bathroom, also my stomach would also make gurgling noises etc. What I don't understand is that I have never had any of these kinds of issues before, my physical health is and always has been flawless, no health conditions in any of my extended family, bar mental health perhaps and my diet is very healthy and balanced. What I don't understand is why I seem to be more sensitive to gluten than I was originally?

Hi Alex and welcome to the forum :)

Hmm where to start. Like me and many others here you've removed gluten from your diet on a hunch, noticed a big impact on your health, mental in this case, and now you're wondering why? 

There are a couple of potential answers. You may have celiac, yes even with 'no symptoms'. In fact the depression could be a symptom, the skin issues etc. There may be some more as well you havent noticed or connected yet.

You may test negative for celiac but STILL react to gluten. That would make you non celiac gluten sensitive.

Take a look at the post in this thread for some more info:

You have some decisions to make. But your bodies reaction to reintroducing gluten is another clue... Your body may have been under attack from gluten ingestion for a long time. With a break, you started to heal, but reintroducing it is provoking a much bigger response. This is very normal and like I say highly suggestive.

Do read that link, check out the linked articles and please post back if you have any questions :)

Good luck!

 

Ennis-TX Grand Master

This is quite common upon reintroduction if you react to it. Where you tested before hand? Are you willing to do a gluten challenge and get tested for celiac and wheat allergies? If so you just need to eat small amounts of gluten for 12 weeks for the blood testing small as in 1 cracker or a half slice of bread a day, before bed to sleep off the symptoms is the preferred method for most. And 2 weeks of this is required for the endoscope where they will check for intestinal damage. Many people with celiac do not even realize they have it as they have just minor symptoms or considered them just a part of life since they have been with it so long.    You could also test negative and just have NCGS in which case the same diet is suggested of going gluten free.

Now you have not mentioned anything else or trouble finding foods but I will go ahead and link or newbie 101 and the alternative food and product list I show to people on the diet, 

Seems your in good health otherwise but these issues that cropped up when you re introduced gluten tend to be proof you have some kind of issues with it. Most of us have much worse responses after going gluten-free and you notice the symptoms you used not to when you bring it back in to your diet. Now that these have been brought to your attention you have some of the proof that you react in a way to it.

Washingtonmama Contributor

Alex, are you serious about your depression slowly going away? If its not too personal, have you stop taking medications now? I've suffered from depression all of my life, even as a baby, according to several of my aunts and my mom. My depression is "treatment resistant", meaning medications don't work well, occasionally not at all. I added Deplin a year ago and for the first time in my life I am consistently off of the couch! Deplin replaces methyl folate, a key vitamin many with chronic depression need but are unable to metabolise. It is already metabolised so your body can get straight to using it. It really helps your depression medications to work better. There is a gene responsible for making your body unable to metabolise methyl folate. Now I'm wondering, could it be the Celiacs that keeps our bodies from being able to use methyl folate in many people with chronic depression? Thinking out loud here. I am so very happy for you that your depression has gone away!!! What a relief it must be for you, maybe a weird feeling for you after all of this time? I know you said you now have some different symptoms, I've heard that happens a lot when people cut out gluten. I so hope my depression goes away like your did! 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,330
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.