Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intollerance seems to get worse after time abstaining


Alex|xelA

Recommended Posts

Alex|xelA Newbie

Hi there, I'm new here but thought this would be good place to ask for advice. I gave up gluten a few months ago after an interesting interview with Jordan B Peterson. Linked below.

i was also amazed to have had similar results I have had long term depression for as long as I can remember and after giving up gluten it just slowly went away, which of course was amazing but also quite disorientating being such a big change. I also noticed that my temper completely disappeared too which was interesting, I would still get annoyed but it just didn't escalate at all now and instead pleated. I also had bad acne that persisted into my late 20's which for the first time in my life is gone, people with good skin cant appreciate just how nice it was to go a whole week without getting new spots.

Anyway, the question I wanted to ask isnt really related to this stuff, but I have noticed that if I reintroduce gluten now (breadcrumbs are a compelling vice for me) then I will have inconsistent issues in the bathroom, also my stomach would also make gurgling noises etc. What I don't understand is that I have never had any of these kinds of issues before, my physical health is and always has been flawless, no health conditions in any of my extended family, bar mental health perhaps and my diet is very healthy and balanced. What I don't understand is why I seem to be more sensitive to gluten than I was originally?

Thanks if you actually bothered to really all of that.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor
On 4/5/2017 at 4:38 PM, Alex|xelA said:

Anyway, the question I wanted to ask isnt really related to this stuff, but I have noticed that if I reintroduce gluten now (breadcrumbs are a compelling vice for me) then I will have inconsistent issues in the bathroom, also my stomach would also make gurgling noises etc. What I don't understand is that I have never had any of these kinds of issues before, my physical health is and always has been flawless, no health conditions in any of my extended family, bar mental health perhaps and my diet is very healthy and balanced. What I don't understand is why I seem to be more sensitive to gluten than I was originally?

Hi Alex and welcome to the forum :)

Hmm where to start. Like me and many others here you've removed gluten from your diet on a hunch, noticed a big impact on your health, mental in this case, and now you're wondering why? 

There are a couple of potential answers. You may have celiac, yes even with 'no symptoms'. In fact the depression could be a symptom, the skin issues etc. There may be some more as well you havent noticed or connected yet.

You may test negative for celiac but STILL react to gluten. That would make you non celiac gluten sensitive.

Take a look at the post in this thread for some more info:

You have some decisions to make. But your bodies reaction to reintroducing gluten is another clue... Your body may have been under attack from gluten ingestion for a long time. With a break, you started to heal, but reintroducing it is provoking a much bigger response. This is very normal and like I say highly suggestive.

Do read that link, check out the linked articles and please post back if you have any questions :)

Good luck!

 

Ennis-TX Grand Master

This is quite common upon reintroduction if you react to it. Where you tested before hand? Are you willing to do a gluten challenge and get tested for celiac and wheat allergies? If so you just need to eat small amounts of gluten for 12 weeks for the blood testing small as in 1 cracker or a half slice of bread a day, before bed to sleep off the symptoms is the preferred method for most. And 2 weeks of this is required for the endoscope where they will check for intestinal damage. Many people with celiac do not even realize they have it as they have just minor symptoms or considered them just a part of life since they have been with it so long.    You could also test negative and just have NCGS in which case the same diet is suggested of going gluten free.

Now you have not mentioned anything else or trouble finding foods but I will go ahead and link or newbie 101 and the alternative food and product list I show to people on the diet, 

Seems your in good health otherwise but these issues that cropped up when you re introduced gluten tend to be proof you have some kind of issues with it. Most of us have much worse responses after going gluten-free and you notice the symptoms you used not to when you bring it back in to your diet. Now that these have been brought to your attention you have some of the proof that you react in a way to it.

Washingtonmama Contributor

Alex, are you serious about your depression slowly going away? If its not too personal, have you stop taking medications now? I've suffered from depression all of my life, even as a baby, according to several of my aunts and my mom. My depression is "treatment resistant", meaning medications don't work well, occasionally not at all. I added Deplin a year ago and for the first time in my life I am consistently off of the couch! Deplin replaces methyl folate, a key vitamin many with chronic depression need but are unable to metabolise. It is already metabolised so your body can get straight to using it. It really helps your depression medications to work better. There is a gene responsible for making your body unable to metabolise methyl folate. Now I'm wondering, could it be the Celiacs that keeps our bodies from being able to use methyl folate in many people with chronic depression? Thinking out loud here. I am so very happy for you that your depression has gone away!!! What a relief it must be for you, maybe a weird feeling for you after all of this time? I know you said you now have some different symptoms, I've heard that happens a lot when people cut out gluten. I so hope my depression goes away like your did! 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.