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Blood in stool?

Ildiko

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Ildiko Newbie
Ildiko
Posted

Hi - my 9 year old daughter was diagnosed in February. She had a seemingly routine winter cold and developed stomach pain, diarrhea, and blood in her stool. Blood work and biopsy tested positive for Celiac. We put her on a gluten-free diet right away and she improved significantly and quickly. The blood stopped almost immediately. She still gets almost daily mild stomach pain/gas pain. It lasts only a minute or two. A few days ago her class used flour in science to make play dough (I was not aware). She got diarrhea a day later and a few days later she had some blood again in her stool. Has anyone else had experience with: (1) blood in the stool and (2) ongoing daily mild tummy aches even after gluten-free? I am so worried about her. Thank you!!!

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Ennis-TX Grand Master
Ennis-TX
Posted

It could just be many other things, if you see blood in the stool you should take her to the doctor if you keep seeing it or if it is alot. If it is black tarish she really needs to go see a doctor, this would indicate bleeding in the small intestines, esophagus, or stomach. If it is bright red streaks this would indicate it is in the last section of the large intestines or colon, this is a tad less worrisome if it only happens every now and then and could be from the diarrhea stressing the colon or something undigested scratching the inside, a sore from the undigested more acidic stool acting as a irritant. At her age I would like to rule out polyps, hemorrhoids, or ulcers but you never know.

 I ended up with a complication called Ulcerative Colitis which is another autoimmune disease. I got it diagnosed this Feb. via colonoscopy after having bloody stool for years. I am no doctor but you might want to ask and see about getting tested for it. It causes inflammation, bloating, gas, ulcers, bleeding. among other things and the triggers are gluten, dairy, and sugars like glucose, fructose, and sucrose, and varies a bit from person to person, 

I wish you luck and will keep you and your daughter on my prayer list. I know how worrisome the blood issue can be when you have no idea what is causing it.

 

GFinDC Veteran
GFinDC
Posted
4 hours ago, Ildiko said:

Hi - my 9 year old daughter was diagnosed in February. She had a seemingly routine winter cold and developed stomach pain, diarrhea, and blood in her stool. Blood work and biopsy tested positive for Celiac. We put her on a gluten-free diet right away and she improved significantly and quickly. The blood stopped almost immediately. She still gets almost daily mild stomach pain/gas pain. It lasts only a minute or two. A few days ago her class used flour in science to make play dough (I was not aware). She got diarrhea a day later and a few days later she had some blood again in her stool. Has anyone else had experience with: (1) blood in the stool and (2) ongoing daily mild tummy aches even after gluten-free? I am so worried about her. Thank you!!!

I have bleeding/pain if I eat dairy.  one of those additional food intolerances that can happen if you have an irritated gut for a long time.  It's great that she is doing better on the gluten-free diet.  But healing from celiac damage is not a 2 week process.  The recovery can be 18 months or more.  Our immune systems are ever vigilant and don't stop attacking enemies (like our guts) right away after a glutening.  The antibodies can keep going for weeks to months depending on the person.

The simpler her diet is the better.  Whole foods like meats, veggies, eggs, nut are good, and have very short ingredient lists.  That makes it simple to determine if they are gluten free.  Processed foods have long lists of ingredients and more chances of cross contamination.  Plus they often have sugars and carbs that are bad for our healing guts.

There is something called a 504 plan you can work with the school.  It is a plan to protect kids with special needs like diet restrictions etc.  A plan like that could require the teacher to notify you if they are having gluten in the classroom ahead of time.

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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