Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iodine and DH

Hayhay17

By Hayhay17
in Dermatitis Herpetiformis

Recommended Posts

Hayhay17 Rookie
Hayhay17
Posted

Hi, 

I have read that iodine can bring out DH more. 

I haven't been diagnosed with DH but I have this rash that I think is DH. It's on my chin, burns and itches (although not all the time) and has raised red bumps. 

I started to take an iodine supplement a few weeks back and 2 days later some tiny blisters appeared on my chin. These blisters have been coming and going ever since. 

I have now stopped taking the iodine supplement but the tiny blisters are still coming and going. 

I was just wondering if this sounds like DH? 

Could the iodine have been what was causing the blisters? If so, once the iodine was out of my system how long would the blisters take to clear? 

Thanks in advance

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Have you been diagnosed with celiac disease?

This rash is only on your chin?

Hayhay17 Rookie
Hayhay17
Posted
  • Author
1 hour ago, squirmingitch said:

Have you been diagnosed with celiac disease?

This rash is only on your chin?

Hi

No I haven't been diagnosed with celiac and yes the rash is just on my chin. 

The doctor just doesn't seem to be able to give any answers. 

They think it could be rosecea but I'm not sure you get blisters with that. 

Scuff Apprentice
Scuff
Posted

Iodine can have a detoxing effect, though I never had a rash from it. Are you doing the full protocol with salt and vitamins, etc? Iodine is awesome, but it's important to do it right or you can cause yourself unnecessary discomfort. 

Hayhay17 Rookie
Hayhay17
Posted
  • Author
20 minutes ago, Scuff said:

Iodine can have a detoxing effect, though I never had a rash from it. Are you doing the full protocol with salt and vitamins, etc? Iodine is awesome, but it's important to do it right or you can cause yourself unnecessary discomfort. 

Sorry, what do you mean with regards to the salt and vitamins etc? 

I'm not actually sure if I have DH but these blisters started to arrive on my face 2 days after starting an iodine supplement. When I done a little research it said iodine can cause the DH rash to be worse/flare up. 

I stopped taking the iodine when I realised this could be the cause of the blisters ... yet blisters still keep appearing. They have started to appear on my forehead / hairline now. 

I suppose I am just trying to put 2 and 2 together and have self diagnosed DH as the doctors keep dismissing me. 

I need to return the doctors really and keep pushing it to see a dematolagist. 

 

Scuff Apprentice
Scuff
Posted

I don't know about iodine making dh worse. I'm new to all this myself. But, I did use iodine several years ago to heal my thyroid. So I know a bit about that ;) Iodine displaces bromine and fluoride in the body. Which can be good- those things aren't good for you. But, you body needs to be able to keep up with flushing it all out, or it can cause problems. For me, it was usually neurological- headache and irritability. Might have also flared up a dh rash. I've had skin issues for a long time that I'm just now recognizing as dh. So, who knows. If I were you, I'd probably stay off the iodine for a little bit. See what happens with the rash and try to get the biopsy/dh diagnosis. Then, restart the iodine when you have a better handle on what's going on. Dr Brownstien's book "Iodine: Why You Need It, Why You Can't Live Without It" is good. Also "Iodine Crisis" by Lynne Farrow. And this article explains the vitamins, etc that they suggest taking with it to support the body. 

 Open Original Shared Link

 

Hayhay17 Rookie
Hayhay17
Posted
  • Author
18 hours ago, Scuff said:

I don't know about iodine making dh worse. I'm new to all this myself. But, I did use iodine several years ago to heal my thyroid. So I know a bit about that ;) Iodine displaces bromine and fluoride in the body. Which can be good- those things aren't good for you. But, you body needs to be able to keep up with flushing it all out, or it can cause problems. For me, it was usually neurological- headache and irritability. Might have also flared up a dh rash. I've had skin issues for a long time that I'm just now recognizing as dh. So, who knows. If I were you, I'd probably stay off the iodine for a little bit. See what happens with the rash and try to get the biopsy/dh diagnosis. Then, restart the iodine when you have a better handle on what's going on. Dr Brownstien's book "Iodine: Why You Need It, Why You Can't Live Without It" is good. Also "Iodine Crisis" by Lynne Farrow. And this article explains the vitamins, etc that they suggest taking with it to support the body. 

 Open Original Shared Link

 

Thank you so much for the reply, the book recommendations and the link. Really useful and I appreciate it. 

Will definitely look into them. 

Thanks again. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd replied to Rejoicephd's topic in Coping with Celiac Disease
      8

      Draft gluten-free ciders… can they be trusted ?

      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos. I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, ...
    2. Wends
      - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    3. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to...
    4. Gigi2025
      - Gigi2025 replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      64

      How Come Gluten Didnt Bother Me In Italy

      Hi Christiana, Many thanks for your response. Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless). I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his...
    5. Wends
      - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed?...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,710
    • Most Online (within 30 mins)
      7,748
    new journey
    Newest Member
    new journey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Inconclusive results

      By Wends · Posted

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.