Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need some advice.


Christory77

Recommended Posts

Christory77 Rookie

So this is all new to me. Had an endoscopy done. Showed inflammation, some biopsies were taken etc. researching going gluten free and I'm completely baffled. What I've read says even a trace of gluten can be "poisonous"( sorry for the dramatics) to a person with celiac, yet gluten free doesn't mean 0 gluten. How is that supposed to provide any peace?  Someone said to get rid of even appliances that had gluten in them due to contamination. How is it that crumbs in a toaster are worse than gluten in supposedly gluten free food? The diet itself doesn't scare me. I've actually found comfort in all the gluten free options. Baking mixes, doughs, pasta, pizza crusts, etc. I was very pleased that I could maintain eating what I like with relatively minor adjustments. The concern being that even doing this, there's still a possibility of consuming gluten just makes me feel like I'm never going to get ahead with this. Any advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master
30 minutes ago, Christory77 said:

So this is all new to me. Had an endoscopy done. Showed inflammation, some biopsies were taken etc. researching going gluten free and I'm completely baffled. What I've read says even a trace of gluten can be "poisonous"( sorry for the dramatics) to a person with celiac, yet gluten free doesn't mean 0 gluten. How is that supposed to provide any peace?  Someone said to get rid of even appliances that had gluten in them due to contamination. How is it that crumbs in a toaster are worse than gluten in supposedly gluten free food? The diet itself doesn't scare me. I've actually found comfort in all the gluten free options. Baking mixes, doughs, pasta, pizza crusts, etc. I was very pleased that I could maintain eating what I like with relatively minor adjustments. The concern being that even doing this, there's still a possibility of consuming gluten just makes me feel like I'm never going to get ahead with this. Any advice?

Everything with the gluten-free certification must be below 20ppm in a lab test. THAT is much much less then a crumb. Toasters are cheap just get a new ones. If you eat whole foods only your chances are much much less of getting CCed. We normally suggest no gluten-free processed foods (dough, mixes, chips, crackers. breads etc) for the first few months only eating whole foods to boost your healing also remove dairy and oats as they can be hard to process with the initial damage (Diary requires the enzyme lactase which is produced by the tips of the villi in the intestines which are the most damaged).   To make it much easier clean our your microwave really goods, put down some paper towels in the bottom when you use it and get some nordicware microwave cook ware, a new mixing bowl. measure cup, spatula, and some basic eating and cooking utensils and you can start fixing stuff that way starting off without worry. I love steamed veggies, omelettes, etc done this way so tender and easy to digest.  I might also suggest using freezer/butcher paper for a clean prep surface starting off also makes clean up a breeze since you just trash it when done.  You can get the rest of you appliances, pots, pans and everything else changed over later. And this makes it simple to get started....PS crockpot liners are a life saver and making huge pots of stew, or roast in them from raw ingredients is super simple and you can eat on it for days.

RMJ Mentor

Many celiacs can eat 10- 20 mg of gluten per day (10-20 ppm in one kilogram of food) without adverse effects.  That is roughly equivalent to 1/16-1/8 teaspoon flour.  More than a trace, but still a small amount.  Some of us cannot handle that amount.

Christory77 Rookie

Thanks. Still figuring it all out. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,989
    • Most Online (within 30 mins)
      7,748

    CharlotteCaroline
    Newest Member
    CharlotteCaroline
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.