Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had my endoscopy today


KIMKABOB

Recommended Posts

KIMKABOB Newbie

I have two children whom are dx with celiac.  I've had stomach/intestinal issues since childhood so I finally got my biopsy today.  The biopsy results won't be in till next week but they did find Barrett's Esophagus, small hiatal hernia, gastritis in the antrum and a normal looking duodenum.  I was gluten free for two years a time ago and my stomach and gut pain went away, as did the joint pain in my wrists, fingers and ankles.  So I am definitely gluten intolerant but when I was gluten free, I didn't worry about bread crumbs in the butter or using a separate toaster.  I'm a bit nervous and overwhelmed with imagining being so strictlly gluten free as celiac's have to be.  My kids who have it are adults and are managing fine but are still suffering vitamin deficiencies and other issues.  I couldn't eat for two days before my test (they also did a colonoscopy) and as hungry as I got, my stomach pain went away.  I just wish the results were in now!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
4 hours ago, KIMKABOB said:

I have two children whom are dx with celiac.  I've had stomach/intestinal issues since childhood so I finally got my biopsy today.  The biopsy results won't be in till next week but they did find Barrett's Esophagus, small hiatal hernia, gastritis in the antrum and a normal looking duodenum.  I was gluten free for two years a time ago and my stomach and gut pain went away, as did the joint pain in my wrists, fingers and ankles.  So I am definitely gluten intolerant but when I was gluten free, I didn't worry about bread crumbs in the butter or using a separate toaster.  I'm a bit nervous and overwhelmed with imagining being so strictlly gluten free as celiac's have to be.  My kids who have it are adults and are managing fine but are still suffering vitamin deficiencies and other issues.  I couldn't eat for two days before my test (they also did a colonoscopy) and as hungry as I got, my stomach pain went away.  I just wish the results were in now!!

Welcome, Kim!  

It is hard to wait for test results!  Did they run a celiac antibodies test as well?  My GI told me that visually everything looked good, but my biopsies revealed villi damage.  Keep us posted.  

Awol cast iron stomach Experienced

Hi and welcome. I was told I had Gastritis and Barrett s esophagus as well upon immediate follow up after my endoscopy/colonoscopy. I was put on ppi' s and zyrtec  prior to my celiac gluten challenge. I am never certain what role they played in my testing stage or results.

I do know my symptoms while on the two were not as  extreme bloating wise but I developed joint pain  I never had. I was off gluten for 3 1/2 years prior to a bad restaurant screw up. Yep -Fed me gluten and despite me quickly realizing it the damage was done. That's when I went for testing because my body's response was even worse than when I ate gluten regularly.

Well after all the money etc and coming out of the procedure immediately to cranberry juice and crackers ?  Yes giving crackers to someone who came to your hospital for CELIAC testing. My testing was often given at the wrong time or wrong test etc. I was unable to consume more than 6 days of gluten in succession. Don't ask. No joke my husband thought perhaps it was best to heal and no longer pursue testing or follow up with that hospital. My insurance company would not pay for the next doctor procedure they wanted to send me to, to cut up my esophagus. I had no symptoms of acid reflux.

I am back to square one again at home healing from the gluten challenge. I could not finish and ironically suffering other food intolerance s as well. I feel the esophagus damage was due to the gluten and they didn't see more damage because I was unable to consume gluten past day 6.

I do hope your experience is/was better than mine. And that you find your answers quickly and painlessly. It is good you have 2 children who can support you on this journey as well as these message boards.

Best Wishes

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,012
    • Most Online (within 30 mins)
      7,748

    Anna Costa
    Newest Member
    Anna Costa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
    • Scott Adams
      It's most likely going to be a celiac disease diagnosis based on your blood test results, but wait for your doctor to give you a green light for going gluten-free, as they may want to do additional testing. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.