Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Numbness in arms and legs?


Chellbell

Recommended Posts

Chellbell Newbie

I was recently diagnosed with Celiac Disease this past February. I'm only 27 and its been hard to adjust. I was wondering if anyone else has had times where your arms and legs go numb and even your speech is slurred? It happens at random times and has only started to happen this month. I feel like I go to the doctor every week when before all this happened I never set foot in a doctors office, I never even needed a primary care physician. Does anyone have this same issue or should I go back to my doctor because thsi is unrelated? Thanks alot in advance for any and all advice.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
1 minute ago, Chellbell said:

I was recently diagnosed with Celiac Disease this past February. I'm only 27 and its been hard to adjust. I was wondering if anyone else has had times where your arms and legs go numb and even your speech is slurred? It happens at random times and has only started to happen this month. I feel like I go to the doctor every week when before all this happened I never set foot in a doctors office, I never even needed a primary care physician. Does anyone have this same issue or should I go back to my doctor because thsi is unrelated? Thanks alot in advance for any and all advice.

I think the fact that this just started, after you have been gluten-free for 4 + months, is concerning.  I would go to a doctor.  It may have nothing to do with Celiac

ravenwoodglass Mentor

I agree you should see your doctor to get checked out. It would be a good idea to have him/her run vitamin and mineral panels including B12. If you are taking any supplements let the doc know. You may need to stop them for a week or two so the panels are accurate. It would also be a good idea to have your celiac panel rerun. Your numbers shouldn't be expected to have gone back to negative yet but they should be coming down.  If not you may be getting CC somewhere.

Be sure to read the Newbie 101 thread at the top of the Coping section. Being gluten free involves much more than just picking gluten free food and misteps are common in the first few months.

Ennis-TX Grand Master
3 hours ago, Chellbell said:

I was recently diagnosed with Celiac Disease this past February. I'm only 27 and its been hard to adjust. I was wondering if anyone else has had times where your arms and legs go numb and even your speech is slurred? It happens at random times and has only started to happen this month. I feel like I go to the doctor every week when before all this happened I never set foot in a doctors office, I never even needed a primary care physician. Does anyone have this same issue or should I go back to my doctor because thsi is unrelated? Thanks alot in advance for any and all advice.

Sounds like a CC issue, or a nerve/brain issues that could be caused by nutrient deficiency. I get gluten ataxia issues when CCed with motor loss, numbness, and brain fog. This can also be caused by severe deficiency of B-vitamins, magnesium, potassium, and a few other vitamins and minerals that are required for our nervous system to function right. Those of us with celiac commonly have issues absorbing these and gluten-free foods are non fortified requiring a special diet to get them naturally and in many cases supplementation, Go see your doctor, talk about it and get some testing done. I might suggest if you wish to try a multi b-vitamins like the sublingual form from liquid health Stress & Energy and Neurological Support, they are the ones I swear by taking 1 tbsp each 3 times a day. Magnesium is another HUGE one we normally get other side effects that SOME people get of low mag is constipation, crawling prickly, itchy skin feeling when very extreme. Natural Vitality Calm or Doctors Best are the two I suggest. If you have constipation also then Calm version is best and you need be careful with it starting in low doses of 1/4 tsp once or twice a day and upping it slowly over 1-2 weeks to the recommended dose.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,018
    • Most Online (within 30 mins)
      7,748

    Laney71
    Newest Member
    Laney71
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.