Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just an update about my daughter!


Mermaid's Mom

Recommended Posts

Mermaid's Mom Enthusiast

Hi Everyone.

I haven't been on here much but some of you may remember me.  I am just returning to give you our update.

So what brought me here originally was that my daughter was textbook Gluten Ataxia and when we put  her on a gluten-free/DF diet she improved so much.    But like everyone else - she seemed to get "glutened" all the time and was clearly VERY sensitive.  Once we had her on the gluten-free/DF diet for a while we realized she was still getting sick and figured she must be also allergic to some of the other common culprits; corn, oats etc.  And on the advice of our Naturopath we put her on a Paleo diet.  I will spare you a LONG story of our journey following that - but the end result was that I learned about something called SIBO - which stands for small intestine bacteria overgrowth.

Celiac's are prone to SIBO.

So I ended up also finding a Dr. in Arizona that is doing AMAZING things resolving SIBO in people.  He has a developed a health plan for curing SIBO that is called the Nemechek Protocol.  It is dead easy to follow and all natural.  

So we started to implement the protocol and here we are 3 months later and my daughter is essentially cured from most of her issues.

She suffered from: 

Chronic constipation - Gone.  

Sleep issues/insomnia - Gone

Sensory Processing Disorder - Mostly resolved.  All sensory issues except some food/texture issues but even that is melting away daily and she is eating way healthier!

Chronic Fatigue -  100% GONE!!!  She was literally absent/late 150 days of school last year and now - NOTHING a true miracle!

Dysphagia (difficulty swallowing) - gone

Dyspraxia (A coordination disorder) - GONE.  almost 2 ys ago she stopped swimming in her mermaid tail.  Stopped most physical activity. She is now doing cartwheels and swimming in her tail again!

Brain fog - Gone.

Central Auditory Processing Disorder - 100% gone!  Her test results 12 mths ago were BAD.  She only had 40% processing in one ear and 65% in the other.  Now hearing is NORMAL!!

ADHD - GONE.  She went to Summer school and the teacher had no idea she had ADHD.  Her daily report cards said that she was "focused and on task" she also got E (excellent) in skills like organization, and time management.

AND...she is now eating ALL FOODS.  Even gluten!!  It took almost 3 months for her to be able to tolerate Gluten (it was still making her queasy) but this past week - pizza, buns, cookies!!  NO ISSUES.

She still has cognitive issues - difficulty trying to recall a word (could NOT remember the word Lunch even with hints) and still forgets what she was about to say but those issues are improving daily.  She is now able to do mental math etc.

Anyway...just thought I would share.  This Dr feels that most people with Celiac also have SIBO and that the SIBO is what is giving everyone all these issues.  Let me know if you have any questions! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Nice to hear she is doing better. after months of antibiotics for a infection. I myself am now dealing with a candidia issue -_-  on stuff for it and just starting that regime lol. Thank god I am already on a ketogenic/paleo diet.

I was actually starting to wonder about you and your daughter yesterday.

Mermaid's Mom Enthusiast
Just now, Ennis_TX said:

Nice to hear she is doing better. after months of antibiotics for a infection. I myself am now dealing with a candidia issue -_-  on stuff for it and just starting that regime lol. Thank god I am already on a ketogenic/paleo diet.

I was actually starting to wonder about you and your daughter yesterday.

Thanks!!  I think about you often as well - you were such an "anchor" for me to cling to when I first landed here!  

Mermaid's Mom Enthusiast

OH and it turns out that WORST thing for SIBO - the thing that causes it to grow out of control and make things worse in Probiotics!

Jmg Mentor

Glad to hear she's doing so well! 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,537
    • Most Online (within 30 mins)
      7,748

    annelizabeth
    Newest Member
    annelizabeth
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.