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Just an update about my daughter!

Mermaid's Mom

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Mermaid's Mom Enthusiast
Mermaid's Mom
Posted

Hi Everyone.

I haven't been on here much but some of you may remember me.  I am just returning to give you our update.

So what brought me here originally was that my daughter was textbook Gluten Ataxia and when we put  her on a gluten-free/DF diet she improved so much.    But like everyone else - she seemed to get "glutened" all the time and was clearly VERY sensitive.  Once we had her on the gluten-free/DF diet for a while we realized she was still getting sick and figured she must be also allergic to some of the other common culprits; corn, oats etc.  And on the advice of our Naturopath we put her on a Paleo diet.  I will spare you a LONG story of our journey following that - but the end result was that I learned about something called SIBO - which stands for small intestine bacteria overgrowth.

Celiac's are prone to SIBO.

So I ended up also finding a Dr. in Arizona that is doing AMAZING things resolving SIBO in people.  He has a developed a health plan for curing SIBO that is called the Nemechek Protocol.  It is dead easy to follow and all natural.  

So we started to implement the protocol and here we are 3 months later and my daughter is essentially cured from most of her issues.

She suffered from: 

Chronic constipation - Gone.  

Sleep issues/insomnia - Gone

Sensory Processing Disorder - Mostly resolved.  All sensory issues except some food/texture issues but even that is melting away daily and she is eating way healthier!

Chronic Fatigue -  100% GONE!!!  She was literally absent/late 150 days of school last year and now - NOTHING a true miracle!

Dysphagia (difficulty swallowing) - gone

Dyspraxia (A coordination disorder) - GONE.  almost 2 ys ago she stopped swimming in her mermaid tail.  Stopped most physical activity. She is now doing cartwheels and swimming in her tail again!

Brain fog - Gone.

Central Auditory Processing Disorder - 100% gone!  Her test results 12 mths ago were BAD.  She only had 40% processing in one ear and 65% in the other.  Now hearing is NORMAL!!

ADHD - GONE.  She went to Summer school and the teacher had no idea she had ADHD.  Her daily report cards said that she was "focused and on task" she also got E (excellent) in skills like organization, and time management.

AND...she is now eating ALL FOODS.  Even gluten!!  It took almost 3 months for her to be able to tolerate Gluten (it was still making her queasy) but this past week - pizza, buns, cookies!!  NO ISSUES.

She still has cognitive issues - difficulty trying to recall a word (could NOT remember the word Lunch even with hints) and still forgets what she was about to say but those issues are improving daily.  She is now able to do mental math etc.

Anyway...just thought I would share.  This Dr feels that most people with Celiac also have SIBO and that the SIBO is what is giving everyone all these issues.  Let me know if you have any questions! :)

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Ennis-TX Grand Master
Ennis-TX
Posted

Nice to hear she is doing better. after months of antibiotics for a infection. I myself am now dealing with a candidia issue -_-  on stuff for it and just starting that regime lol. Thank god I am already on a ketogenic/paleo diet.

I was actually starting to wonder about you and your daughter yesterday.

Mermaid's Mom Enthusiast
Mermaid's Mom
Posted
  • Author
Just now, Ennis_TX said:

Nice to hear she is doing better. after months of antibiotics for a infection. I myself am now dealing with a candidia issue -_-  on stuff for it and just starting that regime lol. Thank god I am already on a ketogenic/paleo diet.

I was actually starting to wonder about you and your daughter yesterday.

Thanks!!  I think about you often as well - you were such an "anchor" for me to cling to when I first landed here!  

Mermaid's Mom Enthusiast
Mermaid's Mom
Posted
  • Author

OH and it turns out that WORST thing for SIBO - the thing that causes it to grow out of control and make things worse in Probiotics!

Jmg Mentor
Jmg
Posted

Glad to hear she's doing so well! 

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

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    • lizzie42
      Son's legs shaking

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      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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