This post is all about poop.

[CaroCaroCaro]

Ok people - this question is all about poo.  

I was diagnosed about 2 months ago through elevated labs and a biopsy showing Marsh type 3 histology in the duodenum. I was fairly asymptomatic, at least of the "obvious/stereotypical" symptoms. I did have Hashimoto's thyroiditis (with normal thyroid hormone levels), which I now believe is possibly connected to then undiagnosed celiac.  

2 months in,  I discovered my normal state was bloated - I didn't even think of it as a symptom, I just thought that was my normal body.  I'm not bloated anymore (thanks gluten-free diet!); However, here's where the poo comes in.  

 During the process of diagnosis, I started asking poop questions that had never crossed my mind before?  Why's it floating? Does everyone's float (according to my family and friends and Dr. Google - no!)  Should it look...raggedy?  Is this diarrhea? That might be diarrhea. All my life I for real just thought this was because I ate a lot of fiber. (not as asympotatic as I thought)

2 months in, this hasn't changed.  Currently,  I'm consistently a Bristol type 6, I go one to three times a day (but more often just 1!)

So here's the questions....

1. How long does it take to get normal, how long did it take you?

2. What should I look for to tell if this is getting better? I have no idea what the standard should be?

 

Thanks! I super appreciate you people here and your very generous answers to everything including poo question.

 

 

[Victoria1234]

I don't know what I am on the poop scale, but I've always been on the c side since I had children. I think once or twice in my entire life I've had d, but I don't recall. So my issue has never really straightened itself out in the last 9 years. But the c does get worse if I've been glutened. Don't despair though, lots of people here have had relief from d or c after going gluten-free.

[Hellodee2]

I've been gluten-free for 11 yrs and I still have poop problems. My GI doc just gave me Linzess for my chronic idiopathic IBS w/constipation. I don't think I've had a normal poop since I was 20 yrs old. I hope you don't go the way my bowels have (I'm 52 and not looking forward to being like this until I die). Good luck.

 

Thought you'd like some worse case scenario input.  At least I don't have UC or Crohn's 

[Fbmb]

On 8/10/2017 at 3:59 PM, CaroCaroCaro said:

Ok people - this question is all about poo.  

I was diagnosed about 2 months ago through elevated labs and a biopsy showing Marsh type 3 histology in the duodenum. I was fairly asymptomatic, at least of the "obvious/stereotypical" symptoms. I did have Hashimoto's thyroiditis (with normal thyroid hormone levels), which I now believe is possibly connected to then undiagnosed celiac.  

2 months in,  I discovered my normal state was bloated - I didn't even think of it as a symptom, I just thought that was my normal body.  I'm not bloated anymore (thanks gluten-free diet!); However, here's where the poo comes in.  

 During the process of diagnosis, I started asking poop questions that had never crossed my mind before?  Why's it floating? Does everyone's float (according to my family and friends and Dr. Google - no!)  Should it look...raggedy?  Is this diarrhea? That might be diarrhea. All my life I for real just thought this was because I ate a lot of fiber. (not as asympotatic as I thought)

2 months in, this hasn't changed.  Currently,  I'm consistently a Bristol type 6, I go one to three times a day (but more often just 1!)

So here's the questions....

1. How long does it take to get normal, how long did it take you?

2. What should I look for to tell if this is getting better? I have no idea what the standard should be?

 

Thanks! I super appreciate you people here and your very generous answers to everything including poo question.

 

 

Well, I'm not a poop expert, but I can tell you that I know a lot about it because of this silly condition. I can also tell you that I'm 9 months in and I still have loose stools frequently, usually in the morning. They fluctuate all the time throughout the day. I honestly think my issue is more IBS than my celiac because at diagnosis my TTG was through the roof at 100 and now it's sitting at 4. I never eat out. I'm nuts about my diet. So I don't think I'm eating gluten.

in your case, I would say give it time. It can take a really long time to heal. Some people on here told me it takes a year or more. In about a month you should go have your numbers checked again. That'll tell you how the diet is working. 

Also, remember that everyone gets tummy aches but not everyone has celiac. My aunt has had this for 20 years and she has drilled that into my head. Not everything is gluten's fault - especially if you're not eating gluten. Could be stress, IBS. 

I expected to feel better immediately because a lot of people claim to, but it took a long time - and like I said, I still have weird bathroom issues. Today is one of those days. It bugs me but I've learned that I need to be patient with myself.