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Testosteron Levels And Fatigue

Jenn2005

By Jenn2005
in Coping with Celiac Disease

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Jenn2005 Contributor
Jenn2005
Posted

My husband (Shane) is now seeing a new doctor to help manage his Celiac. The local GI doctor that we had been going to was really no help except to say check the internet and the library. I had asked him to check his vitamin levels in particular the B12 because Shane was feeling so tired and the last time it was checked he was at about 240 and the normal was 200 - 1100 range. The doctor said it wasn't necessary to check it even though he was in the low normal 2 1/2 months previous and said we should see someone else he didn't want anything to do with Celiac - he said he didn't know enough about it gave us a No Charge slip and sent us on our way. I ended up calling a doctor that Shane had seen back in July when we were on vacation and the worst of this started and we went to see him (8 hours away) but it was worth the trip. He agreed that the vitamin levels needed to be checked and monitored continuously and he also said that with exteme fatigue (for men) testosterone levels should be checked in addition to vitamin B12. He said chronic illnesses and diseases can cause the testosterone level to be low and should be monitored also with the vitamins & mineral levels. Shanes testosterone levels ended up in the normal range but his B12 was very low and he is now getting the injections. Just thought I would share the testosterone information in case any of the men Celiacs are feeling fatigue and nothing else is helping.

Jennifer

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tarnalberry Community Regular
tarnalberry
Posted
... he also said that with exteme fatigue (for men) testosterone levels should be checked in addition to vitamin B12. He said chronic illnesses and diseases can cause the testosterone level to be low and should be monitored also with the vitamins & mineral levels. Shanes testosterone levels ended up in the normal range but his B12 was very low and he is now getting the injections. Just thought I would share the testosterone information in case any of the men Celiacs are feeling fatigue and nothing else is helping.

Even the women should have this checked. Doctors don't like to believe that women (particularly younger ones) can have low testosterone, but my gyn specialist was willing to test me and found that I had next to none in my bloodstream. Supplementing (while it will be continuous for me (until pregnancy)) has definitely made a small, but important, change.

Lisa Mentor
Lisa
Posted

B-12 has done wonderful things for me. When first D I was taking a shot once a week, now once a month. It really helps when I get the shakes in my hands and muscles.

At 51 and post med. I most likely could use the testotos. and would make the home life a little more cuddley. That's a question for all of us over-the-hill broads. I ha ve been on sooo much medicine in the resent past and now that I am not on soooo much...........room for thought :unsure::unsure:

Lisa B.

Jenn2005 Contributor
Jenn2005
Posted
  • Author

How long did it take for you to notice a boost from the B12 injections? Shane is only getting them once every two weeks. They wanted to do them once a week but as I said we live 8 hours from this doctor (we are in the process of moving to his area) so we are only able to fit them in every 2 weeks at this point. I wish his local dr would have done them but ..... Shane has had 2 shots so far and was accidently glutened in between them so right now he hasn't noticed much imporvement but I'm hoping once he's over the gluten mishap he'll feel something from the B12. Do you have to continue with the B12 injections long term or just until the levels come up?

Jennifer

lgleeson Newbie
lgleeson
Posted
How long did it take for you to notice a boost from the B12 injections? Shane is only getting them once every two weeks. They wanted to do them once a week but as I said we live 8 hours from this doctor (we are in the process of moving to his area) so we are only able to fit them in every 2 weeks at this point. I wish his local dr would have done them but ..... Shane has had 2 shots so far and was accidently glutened in between them so right now he hasn't noticed much imporvement but I'm hoping once he's over the gluten mishap he'll feel something from the B12. Do you have to continue with the B12 injections long term or just until the levels come up?

Jennifer

I have been getting Vitamin B-12 shots every week for the past 5 weeks. I have a lot of improvement, but still have some symptoms from the deficiency. My best friend is an internist and said you will not see complete improvement for probably 3-6 months. So, hang in there! Also, can you have a nurse or someone in your area give you the shots? You would just need a script from the doctor and you can get it filled and have someone closer give it to you. My sister (a PharmD) gives me mine.

pokerprincess Newbie
pokerprincess
Posted
My husband (Shane) is now seeing a new doctor to help manage his Celiac. The local GI doctor that we had been going to was really no help except to say check the internet and the library. I had asked him to check his vitamin levels in particular the B12 because Shane was feeling so tired and the last time it was checked he was at about 240 and the normal was 200 - 1100 range. The doctor said it wasn't necessary to check it even though he was in the low normal 2 1/2 months previous and said we should see someone else he didn't want anything to do with Celiac - he said he didn't know enough about it gave us a No Charge slip and sent us on our way. I ended up calling a doctor that Shane had seen back in July when we were on vacation and the worst of this started and we went to see him (8 hours away) but it was worth the trip. He agreed that the vitamin levels needed to be checked and monitored continuously and he also said that with exteme fatigue (for men) testosterone levels should be checked in addition to vitamin B12. He said chronic illnesses and diseases can cause the testosterone level to be low and should be monitored also with the vitamins & mineral levels. Shanes testosterone levels ended up in the normal range but his B12 was very low and he is now getting the injections. Just thought I would share the testosterone information in case any of the men Celiacs are feeling fatigue and nothing else is helping.

Jennifer

that is also true for women we need testerone for energy and mood balancing.exercising, football and listening to rock music will do the trick! I know you are laughing but it's true! :P (beer drinking will not do the trick.)

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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