Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yes, celiac is worse!...


I'msickofbeingsick

Recommended Posts

I'msickofbeingsick Newbie

...than my spinal cord injury! That's right. I'm paralyzed from the chest down and for the most part I have maintained happiness despite not walking and having secondary issues. You can't possibly be happy with celiac, it's absolutely impossible! I guess it says alot to rather be paralyzed than have celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
5 minutes ago, I'msickofbeingsick said:

...than my spinal cord injury! That's right. I'm paralyzed from the chest down and for the most part I have maintained happiness despite not walking and having secondary issues. You can't possibly be happy with celiac, it's absolutely impossible! I guess it says alot to rather be paralyzed than have celiac.

Wow!  All I have to do is change the way I eat a small amount - and my Celiac is taken care of.  Its a pain in the butt sometimes, but not nearly the problem of being paralyzed.

I hope you are seeing a psychologist or counselor.  

kareng Grand Master

Its just that....you have dealt with something so life changing and that limits and adds difficulty to your everyday life....and Celiac is a relatively minor thing compared to that!

Ennis-TX Grand Master

Celiac is a bit overwhelming at first but you quickly get used to, the clean out and reading labels was hard but became second nature. The loss of eating out at most places quickly went away, As a chef I cook better stuff anyway then restaurants. And now days you can find gluten free everything, trust me on this I have compiled quite a list of substitutes trying to help people cope with it and work in helping others with this disease and other food intolerance/allergies.
Funny thing gluten/celiac reactions for me include gluten ataxia....I lose motor control and a full on glutening causes me to collapse to the floor and not be able to move for hours. The nerve damage I have suffered causes me to not having much feeling in my hands/feet so I burn/cut myself all the time. Sorry I know this is nothing compared to full on loss of lower mobility, I can not even phantom living with that and you have really overcome quite a bit to live a happy life with it.
If you need any help recreating recipes or finding old gluten-free favorites I can see about helping you out, hell if you ever down in Texas in my area I will gladly fix a full on meal on the house, truly a inspiration. Keep on going this is just a small speed bump in comparison. Bit of a list, I have more food items for the next run I will do for the 2018 run in December.

https://www.celiac.com/forums/topic/119661-gluten-free-food-alternative-list-2017/

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,381
    • Most Online (within 30 mins)
      7,748

    Username
    Newest Member
    Username
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mrs Wolfe
      Thank you.  I’ll be sure to look into those. 
    • Katerific
      I was diagnosed with microscopic colitis and celiac a couple of years ago.  The GI doctor prescribed a course of budesonide, which moderately helped until I tapered off.    After a lot of ups and downs over the course of 2 years, I am finally in microscopic colitis remission.  Since I am also diabetic, I was started on metformin and Jardiance.  Metformin by itself helped moderately.  I added Jardiance and I was much better.  I stopped the metformin and relapsed and when I added it back, I regained remission.  I think metformin and Jardiance helped my colitis because they reduce inflammation in the gut.  Metformin is known to favorably modulate the gut microbiome and reduce inflammatory cytokines.  Similarly, emerging evidence supports the anti-inflammatory properties of SGLT2 inhibitors like Jardiance.  Once I was on both, the diarrhea stopped completely, even though nothing else ever worked long-term.  There is a Facebook group that can be very informative and helpful.  Look for "Microscopic Colitis and Lymphocytic Colitis Support Group.  You will find that members of the Facebook group identify other pathways to remission of microscopic colitis.
    • knitty kitty
      Hello, @Mrs Wolfe, I crushed three vertebrae moving a chest of drawers.  I take a combination of Thiamine Vitamin B1, Vitamin B12, and Pyridoxine B6.  Together these vitamins have an analgesic effect.  I think it works better than OTC pain relievers.   I also like  "Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets" .   It's all three vitamins together in one pill.  Works wonderfully!
    • knitty kitty
      It's the Potassium Iodide in the HRT pills that is triggering Dermatitis Herpetiformis and the increased IGG levels.   The thyroid is stimulated by the Potassium Iodide, which stimulates immune cells to make more IGG antibodies.   Thiamine Vitamin B1 helps the thyroid function.  I like Benfotiamine and TTFD Thiamax.  
    • Mettedkny
      @Scott Adams Xiromed is one of the generic manufacturers of Progesterone pills.
×
×
  • Create New...