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Glutened - How Long will Symptoms Last?


smiley2017

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smiley2017 Newbie

Hello!

I have been eating gluten free since July due to a variety of new, unexplained symptoms including stomach problems, anxiety, depression, weak nails, tonsil stones, etc. My doctor (a student in training) told me multiple times that there was no way it was gluten/Celiac's Disease even though my gut told me that it was. So I quit gluten on my own and have FELT AMAZING!!!!!! My symptoms went away and everything has been wonderful!!!!! After discussion with my doctor more recently, I decided that I really don't want to go "on gluten" for long enough to get the official test. So as of now, I just have a "gluten sensitivity" which my entire family tells me is fake but I am just continuing to do it because it feels like what is best for me. 

Anyway, on my honeymoon I decided to try about 4-5 bites of cake at our fancy dinner and had symptoms including a headache and stomach problems. The headache lasted for actually a full week after I ate gluten. Is that normal? Is it possible it was just something else? I also have had a HUGE flare up of anxiety/depression this week (I ate the cake containing gluten about 2 weeks ago). Is there any way that is connected? Anybody having any input would be greatly appreciated. 

Thank you :)


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Ennis-TX Grand Master

While initial gut issues generally subside in 2-5 days the immune response in celiac can keep you antibodies raised for 2-6 weeks in some people. Few members have mentioned months before stuff regulated. The headache is one common factor many have with the issues I do not have experience with that aspect but my numbness from my symptoms can last weeks. The random bouts of anxiety weeks later can perhaps be explained by a combination of how it effects your brain, and a bit of malabsorption caused by damage to the intestines resulting in lower rates for vitamins in the b spectrum and minerals like magnesium which deficiency can cause anxiety amongst other issues. I normally suggest raising the dose of magnesium and B-vitamin supplements after a exposure to lessen anxiety and mental/gut/nerve related side effects.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
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    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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