Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

newbie!

Tracy McGuinness

Recommended Posts

Tracy McGuinness Newbie
Tracy McGuinness
Posted

hi all, 

i am a newbie on here and still a bit confused about the hole thing! 

i suffered with constipation and tiredness for a long time and put on weight real easy even tho i eat really healthy! i went to the doctor on numberous occasions and they always told me to drink more water! eat more fruit and veg! anyway long story short a new doctor suggested doing a blood test for wheat and sure enough, it came back high! TTG 150 +,, i was shocked to say the least, so i was booked in for a gastro and colon test....

However, the person doing the gastro test asked me a few questions of what i was in for and why the test, i told her for coeliac and she asked about symptoms, told her mine and she told me in a near condescending way that thats not coeliac symptoms and kinda laughed at me and shock her head! at the time i didnt realise my bloods where high or did not know much about the blood  results or the hole thing really!

When she finished she said just as i though they look normal, i felt a bit stupid as i was half drugged too!

Anyway, 4 weeks later i went for my colon test and the doctor (a different one) asked me a few questions again!! i was reluctant to say i was being tested for coeliac and i had a gastro test a couple of weeks before hand, he pulled out the file and had a look through it and said, yes you arecoeliac,,, not sure how this happened or why i wasnt told properly or even what happens next??? now this was only last week. 

Has anyone else had my symtoms?? alot of people i spoke to seem to have the opposite effect??  and if so, has the diet made a difference to them? How, long did it take? and will this tiredness go away!!

Anyway thanks in advance!!

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Those are all symptoms of Celiac.  For some it is constipation and weigh gain.  Its odd that way.    Did the doctor offer any help or advice?  You will need to go gluten free for life.  

Ennis-TX Grand Master
Ennis-TX
Posted
1 hour ago, Tracy McGuinness said:

hi all, 

i am a newbie on here and still a bit confused about the hole thing! 

i suffered with constipation and tiredness for a long time and put on weight real easy even tho i eat really healthy! i went to the doctor on numberous occasions and they always told me to drink more water! eat more fruit and veg! anyway long story short a new doctor suggested doing a blood test for wheat and sure enough, it came back high! TTG 150 +,, i was shocked to say the least, so i was booked in for a gastro and colon test....

However, the person doing the gastro test asked me a few questions of what i was in for and why the test, i told her for coeliac and she asked about symptoms, told her mine and she told me in a near condescending way that thats not coeliac symptoms and kinda laughed at me and shock her head! at the time i didnt realise my bloods where high or did not know much about the blood  results or the hole thing really!

When she finished she said just as i though they look normal, i felt a bit stupid as i was half drugged too!

Anyway, 4 weeks later i went for my colon test and the doctor (a different one) asked me a few questions again!! i was reluctant to say i was being tested for coeliac and i had a gastro test a couple of weeks before hand, he pulled out the file and had a look through it and said, yes you arecoeliac,,, not sure how this happened or why i wasnt told properly or even what happens next??? now this was only last week. 

Has anyone else had my symtoms?? alot of people i spoke to seem to have the opposite effect??  and if so, has the diet made a difference to them? How, long did it take? and will this tiredness go away!!

Anyway thanks in advance!!

 

 

Yeah mine was the constipation really bad, it clears up some but my constipation was partially trigger by the damage causing malabsoprtion of magnesium leading to the constipation along with other things and complications. All sore layers up into a big compounding issue, example the tiredness is a combo deal to and varies from person to person, part of it is nutrient deficiency particularly b-vitamins vitamin D, iron. magnesium, etc. Another part with the constipation has to do with the poop being stuck in you so long can cause a sort of poison like effect, and not letting your system run right. I will give some tips on top of the gluten free diet. I also suggest you read the gluten free 101, a crumb or gluten residue from scratched cookware that retains gluten can cause your antibodies to flare back up.

Constipation, with this I suggest you supplement with magnesium citrate, Natural Vitality Magnesium Calm, start off with very small doses like 1/4tsp and over 1-2 weeks adjust it up to the full dose. It might hit a bit hard and cause loose stools while you body adjust.
Tiredness/stress Look up Liquid Health Stress & Energy and Liquid Health Neurological support, 1tbsp each 3 times a day before meals. This will work with your B-vitamins
You might need a Vitamin D or Iron Supplement in addition.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Rebeccaj's topic in Super Sensitive People
      4

      symptoms.

      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and...
    2. knitty kitty
      - knitty kitty replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly Diagnosed

      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure. These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract. Joints can ache, thyroid problems or the pancreas can develop. Ataxia is just one of over two hundred...
    3. knitty kitty
      - knitty kitty replied to Rebeccaj's topic in Super Sensitive People
      4

      symptoms.

      @Rebeccaj, When you smell toast or pasta cooking, that means that particles of that food are floating around in the air. Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract. If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies...
    4. Rebeccaj
      - Rebeccaj replied to Rebeccaj's topic in Super Sensitive People
      4

      symptoms.

      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour Airbourne without eating.?
    5. knitty kitty
      - knitty kitty replied to CeliacPI's topic in Related Issues & Disorders
      8

      Lymphocytic Colitis with Celiac

      Do discuss this recent article with your doctors. Thiamine Vitamin B 1 is important to intestinal health. Thiamine deficiency can occur in Celiac Disease due to malabsorption. Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms. Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,512
    • Most Online (within 30 mins)
      7,748
    L.B.
    Newest Member
    L.B.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      symptoms.

      By trents · Posted

      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and countertops. And what about that toaster you mentioned?
    • knitty kitty
      Newly Diagnosed

      By knitty kitty · Posted

      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure.  These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract.  Joints can ache, thyroid problems or the pancreas can develop.  Ataxia is just one of over two hundred symptoms of Celiac Disease. Some people with Celiac Disease also make tTg IgA 6 antibodies in response to gluten exposure.  The tTg IgA 6 antibodies attack the brain, causing ataxia.  These tTg IgA 6 antibodies are also found in people with Parkinson's disease, though they may not have Celiac Disease.  First degree relatives (parents, siblings, children) of those diagnosed with Celiac should be tested as well.  Celiac is genetic.  Your mom and sister should be tested for Celiac, too!   Definitely a good idea to keep to a gluten free diet.  
    • knitty kitty
      symptoms.

      By knitty kitty · Posted

      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
    • Rebeccaj
      symptoms.

      By Rebeccaj · Posted

      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
    • knitty kitty
      Lymphocytic Colitis with Celiac

      By knitty kitty · Posted

      Do discuss this recent article with your doctors.  Thiamine Vitamin B 1 is important to intestinal health.  Thiamine deficiency can occur in Celiac Disease due to malabsorption.  Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms.   Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming in macrophages https://pubmed.ncbi.nlm.nih.gov/39890689/#:~:text=Our mechanistic study revealed that,necessary to protect against colitis. "Conclusion and implications: Our study provides evidence linking thiamine deficiency with proinflammatory macrophage activation and colitis aggravation, suggesting that monitoring thiamine status and adjusting thiamine intake is necessary to protect against colitis."
×
×
  • Create New...