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Next steps

Densel

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Densel Newbie
Densel
Posted

Hello,

I’m curious about what my next steps should be in the process. I recently had blood tests and had low or negative tgg Iga results and a weak positive result for tgg igg. My doctor is suggesting I have a biopsy done next but I’m wondering if I should ask for more blood tests before going forward with the biopsy as it’s rather expensive. I have pretty severe symptoms of bloating, diarrhea, gas, etc. and already had a bunch of other testing that has come back negative. My symptoms seem to be getting worse as I am now experiencing nausea. I want to figure out what is going on but want to make sure there ain’t any other tests I could do beforehand. Any suggestions on what do to next would be helpful. 

 

Thanks!

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cyclinglady Grand Master
cyclinglady
Posted
2 hours ago, Densel said:

Hello,

I’m curious about what my next steps should be in the process. I recently had blood tests and had low or negative tgg Iga results and a weak positive result for tgg igg. My doctor is suggesting I have a biopsy done next but I’m wondering if I should ask for more blood tests before going forward with the biopsy as it’s rather expensive. I have pretty severe symptoms of bloating, diarrhea, gas, etc. and already had a bunch of other testing that has come back negative. My symptoms seem to be getting worse as I am now experiencing nausea. I want to figure out what is going on but want to make sure there ain’t any other tests I could do beforehand. Any suggestions on what do to next would be helpful. 

 

Thanks!

Sure, ask for the rest of the celiac blood panel (EMA, DGP IgA and DGP IgG).  It would be worth the few extra dollars, not to mention that if my GI had not ordered the complete panel, my diagnosis would not have been caught.   Did they check to see if you are IgA deficient?  That is a separate test used as a control test in the case of diagnosing celiac disease.  It could explain the negative TTG IgA test, but then some celiacs are seronegative (about 10%).  In that case, the endoscopy/biopsies are needed.  

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      symptoms.

      By trents · Posted

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      symptoms.

      By knitty kitty · Posted

      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
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      symptoms.

      By Rebeccaj · Posted

      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
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