Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Next steps

Densel

Recommended Posts

Densel Newbie
Densel
Posted

Hello,

I’m curious about what my next steps should be in the process. I recently had blood tests and had low or negative tgg Iga results and a weak positive result for tgg igg. My doctor is suggesting I have a biopsy done next but I’m wondering if I should ask for more blood tests before going forward with the biopsy as it’s rather expensive. I have pretty severe symptoms of bloating, diarrhea, gas, etc. and already had a bunch of other testing that has come back negative. My symptoms seem to be getting worse as I am now experiencing nausea. I want to figure out what is going on but want to make sure there ain’t any other tests I could do beforehand. Any suggestions on what do to next would be helpful. 

 

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted
2 hours ago, Densel said:

Hello,

I’m curious about what my next steps should be in the process. I recently had blood tests and had low or negative tgg Iga results and a weak positive result for tgg igg. My doctor is suggesting I have a biopsy done next but I’m wondering if I should ask for more blood tests before going forward with the biopsy as it’s rather expensive. I have pretty severe symptoms of bloating, diarrhea, gas, etc. and already had a bunch of other testing that has come back negative. My symptoms seem to be getting worse as I am now experiencing nausea. I want to figure out what is going on but want to make sure there ain’t any other tests I could do beforehand. Any suggestions on what do to next would be helpful. 

 

Thanks!

Sure, ask for the rest of the celiac blood panel (EMA, DGP IgA and DGP IgG).  It would be worth the few extra dollars, not to mention that if my GI had not ordered the complete panel, my diagnosis would not have been caught.   Did they check to see if you are IgA deficient?  That is a separate test used as a control test in the case of diagnosing celiac disease.  It could explain the negative TTG IgA test, but then some celiacs are seronegative (about 10%).  In that case, the endoscopy/biopsies are needed.  

Open Original Shared Link

 

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,339
    • Most Online (within 30 mins)
      7,748
    Skydawg
    Newest Member
    Skydawg
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ShadowLoom
      Gluten Free Cannabis Edibles

      By ShadowLoom · Posted

      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      Damage after 13 years gluten free

      By Scott Adams · Posted

      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Damage after 13 years gluten free

      By RMJ · Posted

      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
    • trents
      Struggling to get into a good pattern

      By trents · Posted

      Autoimmune diseases tend to cluster. Many of them are found close together on the chromosomes. 
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Just giving another update... I was referred to rheumatology, and they suspect that I may also be dealing with fibromyalgia (it has not been formally diagnosed, but just suggested at this point).  So, I am continuing with the anti-inflammatory diet and vitamins and still working to keep getting rid of all these hidden gluten sources, but I also do have another possible explanation for some of the issues that I'm dealing with.
×
×
  • Create New...