Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

glutened - how to stop the Diarrhea

Christine L H

Recommended Posts

Christine L H Newbie
Christine L H
Posted

Hello all, I am new to this site but have had celiac spru ( disease ) for ten years now. I thought I was doing good, but I obviously am not. I am having a horrible attack right now, as bad as the first one. I also have MC. I must have got contaminated somehow. I realize now that I absolutely cannot rely on products that say gluten free anymore. I believe I am just to sensitive now. How do you stop the  relentless diarrhea? I have taken a ton of anti diarrhea pills but the beast is still roaring in my belly and out...of it. Help! Any suggestions? I can't even make it to the toilet, so I sleep next to the bathroom now to avoid accidents in bed. Can't eat or drink ANYTHING or it gets worse. Had anyone dealt with this? I feel so alone and scared it will never stop. Thanks in advance,

Christine

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
2 minutes ago, Christine L H said:

Hello all, I am new to this site but have had celiac spru ( disease ) for ten years now. I thought I was doing good, but I obviously am not. I am having a horrible attack right now, as bad as the first one. I also have MC. I must have got contaminated somehow. I realize now that I absolutely cannot rely on products that say gluten free anymore. I believe I am just to sensitive now. How do you stop the  relentless diarrhea? I have taken a ton of anti diarrhea pills but the beast is still roaring in my belly and out...of it. Help! Any suggestions? I can't even make it to the toilet, so I sleep next to the bathroom now to avoid accidents in bed. Can't eat or drink ANYTHING or it gets worse. Had anyone dealt with this? I feel so alone and scared it will never stop. Thanks in advance,

Christine

Sounds like you might have a bad stomach virus or something else.  IF this goes on for more than a couple of days, you need to get to a doctor.  

Christine L H Newbie
Christine L H
Posted
  • Author

Thanks Karen, these symptoms I am having are exactly like the first time I experienced it. I didn't know I had celiac disease then, but after a month of agony I was diagnosed via biopsy. The difference now is I eat gluten free. I ate at a pizza place that  serves gluten free pizza earlier this evening and at two in the morning I woke to a lets just say unpleasant issue. I must have got cross contaminated. No matter what I do it won't stop. Do you know of anything other than Imodium to stop the D? 

Thanks so much,

Christinr

Christine L H Newbie
Christine L H
Posted
  • Author

PS: How to you reply on this site?

Jmg Mentor
Jmg
Posted
15 minutes ago, Christine L H said:

Thanks Karen, these symptoms I am having are exactly like the first time I experienced it. I didn't know I had celiac disease then, but after a month of agony I was diagnosed via biopsy. The difference now is I eat gluten free. I ate at a pizza place that  serves gluten free pizza earlier this evening and at two in the morning I woke to a lets just say unpleasant issue. I must have got cross contaminated. No matter what I do it won't stop. Do you know of anything other than Imodium to stop the D? 

Hi Christine, 

You may want to ask this on a separate topic if you want more replies, but in the meantime how are you with dairy? Could be food poisoning and cross contamination is one possibility but there will be dairy in the gluten-free pizza and after a few years gluten-free I've only recently realised that dairy isn't just something I need to mostly avoid but I have to cut it out completely. 

14 minutes ago, Christine L H said:

PS: How to you reply on this site?

A few ways. There's a quote reply button under posts, or you can highlight the text and press the quote this popup that appears.

 

 

kareng Grand Master
kareng
Posted

I split this to its own topic.

I couldn't tell by your first post if you had this going on for days, weeks or just a few hours.

 

Sounds like some cc on that pizza.  

Ennis-TX Grand Master
Ennis-TX
Posted
1 hour ago, Christine L H said:

Hello all, I am new to this site but have had celiac spru ( disease ) for ten years now. I thought I was doing good, but I obviously am not. I am having a horrible attack right now, as bad as the first one. I also have MC. I must have got contaminated somehow. I realize now that I absolutely cannot rely on products that say gluten free anymore. I believe I am just to sensitive now. How do you stop the  relentless diarrhea? I have taken a ton of anti diarrhea pills but the beast is still roaring in my belly and out...of it. Help! Any suggestions? I can't even make it to the toilet, so I sleep next to the bathroom now to avoid accidents in bed. Can't eat or drink ANYTHING or it gets worse. Had anyone dealt with this? I feel so alone and scared it will never stop. Thanks in advance,

Christine

IF a Pizza place offers both gluten and gluten-free pizza....you have a extreme chance of CC, consider the prep area, the flour dusting, the reaching from gluten pizza to topping bins and back, the ladle used to put hte sauce on and spread it from one pizza to another, the pizza peel they use to put in and remove the pizza the cutters.....so many areas where a untrained personal can make a mistake and CC you.

Other thoughts dairy is a HUGE issue for many cealics, especially right after a gluten exposure. The tips of the villi help with the enzymes to break down dairy....damaged tips and you do not get enough of the enzyme and D, gas etc ensue. Best to avoid it for a bit again after a gluten exposure. For me it is a life time avoidance......

Thoughts for helping to firm up stool. Ground flax seed in food/beverages adds bulk and thickens up stool, coconut flour is also good for this in a baked good, or porridge, Pea Protein is high in iron and can help form up stools (NOT DEPENDS ON BRAND) I use Growing Naturals often and found the 30% DV iron in it is great. Avoid Sugars, starches, fruit, for now to keep gas down, and for god sake stay away from spices or you WILL feel the burn. Go with herb seasonings for awhile....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dellatemple Newbie
dellatemple
Posted

I use Great Plains Bentonite Clay to stop the diarrhea. Works quickly for me. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,986
    • Most Online (within 30 mins)
      7,748
    Christine1
    Newest Member
    Christine1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.