Condition worsened after gluten free diet

[a91]

I am on the 4th day of my gluten free diet and my condition worsened compared to when I was eating gluten food.

Is this a normal thing in the beginning?

Before that I was going out 1-2 times a day, it is already the third day I am going out like 4 times a day which I don't think is normal.

 

ps. I am sure that i am using gluten free food, because we make everything at home.

[Ennis-TX]

It does get a bit worse as your system clears out and your antibodies come down, you will also get more sensitive and many of us went through a withdrawal stage on the levels of a opid withdrawal. 

Few things to consider, read the Newbie 101 thread to make sure you decontaminated your cooking space, IE new colander, threw out scratched pans, wooden spoons, condiments in jars with crumbs, CCed spices etc. Whole unprocessed foods are your friends right now, and most processed gluten free premade foods are loaded with starches, sugars and stuff you do not want or need at this point. https://www.celiac.com/forums/topic/91878-newbie-info-101/

Second many of us have to remove dairy and oats for awhile, the enzymes to break down dairy are produced by the tips of the villi...which are damaged with celiac, oats are commonly CCed and some celiacs have the same issues wit them. Food sensitivities and intolerance issues are also common, keep a food diary record what you eat, how it is prepared and how it effects your hours later and throughout the day, change up your diet removing foods for a few days and look for patterns.

 

[Jmg]

15 hours ago, a91 said:

I am on the 4th day of my gluten free diet and my condition worsened compared to when I was eating gluten food.

Is this a normal thing in the beginning?

Before that I was going out 1-2 times a day, it is already the third day I am going out like 4 times a day which I don't think is normal.

If you have an issue with gluten as your dr suspects

https://www.celiac.com/forums/topic/120627-is-diagnosis-based-on-anti-endomisial-antibody-iga-and-igg-enough/?do=findComment&comment=987849

Then it's quite normal to have a rocky time when you start the gluten free diet. If you think that your body has been under attack for a long time, it has its armies ready to fight and all of a sudden the enemy disappears! It's a major change for your gut and major change in the gut tends to equal upset and discomfort.

stick it out, stay gluten free, keep a journal noting what you eat and when and how you feel. That will help you and your doctor piece this together. 

Google how to keep a food journal for more info

best of luck

matt

[Juca]

I only had occasional intestinal problems before my diagnosis, so I am not the best person to tell you if is normal for it to get worse. However, for the first few weeks, I did feel even more tired than usual (and I was already always tired and sleepy!). But suddenly, around the 3rd week, I could think clearly. Before, I would had to think for a while just to remember what I did that day. And then, out of nowhere, it was in the evening and I was fully awake and my brain running like I didn't remember it could. 

I was so happy. 

The body took a little while longer to catch up, though. I needed the iron infusions and vitamin injections to have more physical stamina and not run out of breath just by going up a street. 

 

So, hang in there. Stick to the basics (bone broth, ginger tea, some digestive enzymes, no dairy, cooked veggies and some meat..), get as much rest as you can and let us know how you are doing.