Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened?


April36

Recommended Posts

April36 Rookie

Hi, I woke up last Friday with a horrible headache, this eventually turned into stomach pains, loose stools, nausea, and just generally not feeling well. It seems to come and go. I feel very low energy, tired and weak. I followed up with my GI Dr. since it’s been almost a week and she advised I follow up with my pcp that accidental gluten ingestion wouldn’t cause tiredness, achiness, weakness etc and said perhaps I have an infection. I have only had my diagnosis for 9 months so fairly new. Can celiac cause the fatigue etc after being Glutened? 

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master
29 minutes ago, April36 said:

Hi, I woke up last Friday with a horrible headache, this eventually turned into stomach pains, loose stools, nausea, and just generally not feeling well. It seems to come and go. I feel very low energy, tired and weak. I followed up with my GI Dr. since it’s been almost a week and she advised I follow up with my pcp that accidental gluten ingestion wouldn’t cause tiredness, achiness, weakness etc and said perhaps I have an infection. I have only had my diagnosis for 9 months so fairly new. Can celiac cause the fatigue etc after being Glutened? 

Thank you!

-_- Yeah, that is one of the major signs, I mean your body is not absorbing food, B-vitamins, magnesium, iron, etc. are being hampered during a exposure, your dumping your guts out to the porclain gods and not getting what your need from what you eat. Top it off with your immune system is going bonkers in overdrive trying to kill the gluten proteins and attacking your intestines.....why would not NOT feel tired and acky?!

Go to simple foods for now, steamed mushed veggies, soups, stews, I used to love eating rice gruel (congee) either savory or sweet but now eat a nut based porridge when sick. Keep to simple whole foods right now and make it easy on your gut, bone broths and teas help. If you get accidentally glutened they also have a enzyme out now that reduces your symptoms called gliden X that you take right after. There are many other herbal remedies to help with different symptoms so if you want post what your dealing with and get suggestions. Might looking into a B-vitamin complex for awhile to help with energy.

April36 Rookie
6 hours ago, Ennis_TX said:

-_- Yeah, that is one of the major signs, I mean your body is not absorbing food, B-vitamins, magnesium, iron, etc. are being hampered during a exposure, your dumping your guts out to the porclain gods and not getting what your need from what you eat. Top it off with your immune system is going bonkers in overdrive trying to kill the gluten proteins and attacking your intestines.....why would not NOT feel tired and acky?!

Go to simple foods for now, steamed mushed veggies, soups, stews, I used to love eating rice gruel (congee) either savory or sweet but now eat a nut based porridge when sick. Keep to simple whole foods right now and make it easy on your gut, bone broths and teas help. If you get accidentally glutened they also have a enzyme out now that reduces your symptoms called gliden X that you take right after. There are many other herbal remedies to help with different symptoms so if you want post what your dealing with and get suggestions. Might looking into a B-vitamin complex for awhile to help with energy.

Thank you so much for the reply. Its reassuring to know that it could all be attributed to being glutened. How long does the affects of gluten last? I will try more to stick to simple foods. I will also have to look into gliden X, and the b vitamins for energy. (I am having surgery in a week and a half so I was suppose to stop my multivitamin and a few others until after that) bad timing! I am feeling extremely frustrated that my Dr.s seem to act like they know what they are talking about, but are in fact clueless, or offer little help. Thanks again!

knitty kitty Grand Master
11 hours ago, April36 said:

Hi, I woke up last Friday with a horrible headache, this eventually turned into stomach pains, loose stools, nausea, and just generally not feeling well. It seems to come and go. I feel very low energy, tired and weak. I followed up with my GI Dr. since it’s been almost a week and she advised I follow up with my pcp that accidental gluten ingestion wouldn’t cause tiredness, achiness, weakness etc and said perhaps I have an infection. I have only had my diagnosis for 9 months so fairly new. Can celiac cause the fatigue etc after being Glutened? 

Thank you!

April, you might want to get your B12 levels checked before and after surgery.  Anesthesia can cause a B12 deficiency.  Your body needs lots of B12 to process out the nitrous oxide (laughing gas) given in anesthesia.  Deficiency symptoms may start several weeks afterwards because your body's store of B12 becomes rapidly depleted.  

Many Celiacs develop a B12 deficiency because of the absorption problems we have.

  Here's an article that explains more.

Open Original Shared Link

Hope this helps!

 

Ennis-TX Grand Master
7 hours ago, April36 said:

Thank you so much for the reply. Its reassuring to know that it could all be attributed to being glutened. How long does the affects of gluten last? I will try more to stick to simple foods. I will also have to look into gliden X, and the b vitamins for energy. (I am having surgery in a week and a half so I was suppose to stop my multivitamin and a few others until after that) bad timing! I am feeling extremely frustrated that my Dr.s seem to act like they know what they are talking about, but are in fact clueless, or offer little help. Thanks again!

I use Liquid Health Stress & Energy and their Neurological Support formula 1tbsp each 3 times a day before a meal for B-vitamins.
My loose stools lasted about about a week this last exposure. Before that exposure it was over 3 weeks? Anyway I had to lower my magnesium levels and try eating stuff like coconut flour and eggs and coconut flour porridge to try to slow it down and regulate it. I think about a month of random neurological issues were present on my issue back in my holiday exposure but this last exposure I took the glidenX and noticed it took 2 days for them to show and they cleared up in a week, found the delay odd but I guess it means the stuff works to some degree.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    5. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,361
    • Most Online (within 30 mins)
      7,748

    Julie Mitchell
    Newest Member
    Julie Mitchell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.