Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rash on neck


Paula2407

Recommended Posts

Paula2407 Newbie

Hi all, 

New to the site. I just recently got a rash 3 weeks ago. Chemist told me take antihestimes thinking its a food allergy. 

I have had stomach issues for years never been tested for anything. Told IBS. When travelling abroad for a few years i had a colonoscopy done found 6 polyps. Told to change diet lose weight etc after.

Lost 40kg. Lived on natural products. Occassional meal take out where i would rush to bathroom etc. But felt great for a year and a half.

Moved back to Uk. Eat less natural and old symptoms came back tummy pain diahorea/constipation. Feeling sick all the time. I sleep every afternoon as when I eat I feel tired. 

I guess my questions is does this look like a gluten rash? I am already trying to persuade gaestro team for colonoscopy. As recommend one in 3 years. But UK say I dont need to have one. 

Can I request biopsy and have a second opinion if not.

Not a day that not bloated, foggy head, headache, feeling sick, being sick and now a rash for 3 week that isnt going.

Sorry for putting on here but its getting me down all the time. 

P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor

Hi Paula and welcome :)

You do have symptoms that are consistent with coeliac / non coeliac gluten sensitivity, but obviously no-one can diagnose that on a forum!

Have you been given a coeliac blood test? That would be the first step. Then it would be an endoscopy rather than colonoscopy if coeliac were suspected. They would be looking via biopsy at the small intestine for signs of villi damage.

You may well have been given one of these already if you've been speaking to a gastroenterologist in the UK but it would be good to confirm this. The test would only be accurate if you were eating gluten every day for 8-12 weeks beforehand. If not, you could get a false negative.

See if you can find out if you had this test and request a copy of it from your GP. Note they may charge you for it, I paid a fiver for mine to be photocopied... :(

 Sometimes they will proceed to endoscopy even if the test is negative. That happened in my case (also in UK). 

You may be tempted to cut gluten out. If you do this you may notice a difference but you will also make the diagnosis process much harder. So best idea is usually to stay on it till testing is completed. However if you finish with a negative result, DO TRY THE gluten-free DIET REGARDLESS... as you may be like me, test negative but react badly to gluten also known as Non Coeliac Gluten Sensitive. 

There's a forum FAQ stickied above and this topic may be useful also. Note the blood test info on that post a little out of date, these are the tests you need:

Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

Good luck!

Matt

 

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      TTG IgA and IGA elevated mildy

    2. - thejayland10 replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      TTG IgA and IGA elevated mildy

    3. - HilaryM posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      New onset constant gas

    4. - knitty kitty replied to Bindi's topic in Super Sensitive People
      43

      Refractory or super sensitive?

    5. - lizzie42 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Gluten free and oat free bars not sugary?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,770
    • Most Online (within 30 mins)
      7,748

    R633
    Newest Member
    R633
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      Comparing results with different units can be very difficult, or impossible. What are the normal ranges for each result? 
    • thejayland10
      my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening  thank you for attaching this, could this happen randomly even after being gluten-free for so long ? my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening 
    • HilaryM
      Hi all, I’ve been following a strict gluten-free diet for 1.5 years since I was diagnosed. The last few weeks though I’ve suffered almost continual bloated stomach and flatulence. It literally is almost constant - and I was never this way before. I can’t think of any change to my diet, activity, etc. I’m dying - it’s so uncomfortable and embarrassing to feel like I have zero control over this. Any ideas? Thank you!
    • knitty kitty
      @Levi, How are you doing?  Sorry I missed your posts.   How's your thyroid?  Did your Vitamin D stabilize?  Do you have long hauler syndrome after Covid? Consider switching to Vitamin D 3, the natural form of Vitamin D.  Vitamin D 2 is the synthetic form of Vitamin D which the body can have difficulty changing to an active form.  Also, Thiamine is needed to active Vitamin D.   Hypothyroidism can be caused by Thiamine deficiency.  The thyroid is an organ that uses lots of thiamine.  sometimes thyroid deficiency can also cause hyperthyroidism, or swings between both hyper- and hypo-thyroidism. We need more Thiamine when we're sick with an infection (like Covid) or injured.  We need more Thiamine when we're physically active.  We need more Thiamine when we're emotionally stressed or worried.  Our brain uses the more Thiamine just thinking than our muscles do while running a marathon.  Thiamine is extremely important in fighting infections.  Covid patients and long haulers have found taking Thiamine has improved their survival rate and long term symptoms.   Consider taking a Thiamine supplement like Benfotiamine which has been scientifically shown to promote intestinal healing.  Damaged villi need thiamine to grow back.   Be sure to take a magnesium supplement, too.  Thiamine and magnesium make life sustaining enzymes together.  You also need magnesium to keep calcium in the bones.  The thyroid regulates calcium.  A wonky thyroid can lead to reduced bone density.   Remember the B vitamins all work together in concert so adding a B Complex to Benfotiamine and magnesium supplements and Vitamin C would be great in improving absorption of nutrients while we're dealing with celiac disease. Namaste
    • lizzie42
      I'm looking for bars or non perishable snacks for my 2 kids. They are 5 and 3. The 3 year old seems sensitive to oats also. We do a lot of long hikes and bike rides. They eat mostly fresh foods but for these rides and hikes we need easy and non perishable. Also that taste good! We do a lot of larabars and freeze dried apples but those are getting old. Any ideas? 
×
×
  • Create New...