Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Primary Care Doctor Leaving Practice


Guest nini

Recommended Posts

Guest nini

I just got a letter from my primary care Dr.s office that my Dr. has left the practice and unfortunately where he has gone to it will not be an option for his current patients to follow him. I am soooooooo upset by this. The Dr.s that are left at this practice are ok but NOT THE SAME. He's the one that spent over an hour with me the first time I went to him. He's the one that ran all kinds of tests to try and figure out what was wrong (when another Dr. in the practice practically blew me off and told me I just needed a high fiber WHOLE WHEAT diet :angry: ) He's the one that eventually determined that I needed to see a GI and sent me to the Dr. that dx'ed Celiac... He's the one that has been in charge of all of my follow up care and visits... WHAT AM I GOING TO DO???? :(:(:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Bummer. :(

Do you have to stick with that same practice? If you're not happy with any of the doctors there maybe you could find someone who is as good as he is. Maybe you can contact him and see if he knows of someone you might be happy with??

Guest nini

There is one lady at the practice that I like ok... I'll give her another chance... The letter made it clear that we wouldn't be able to contact this Dr.... this sux. I don't have to stay with that practice, but I had been soooooo happy with him... and most of the staff is pretty decent too. I just don't want to have to break in a new Dr. will all of my "issues"... it's a family practice and he has also become my daughters Dr. as well, so I will have to find her a new Dr. too.

The new Dr.s all have names that sound foreign...

  • 2 weeks later...
Peter J Liepmann MD Newbie

Did you get the letter from your doc, or the practice he's leaving? If he's really going far out of the area, ok, but sometimes partnership conflicts and bad break-ups happen and the original practice wants to keep all the patients, so they say...all sorts of things, like he's leaving the area when he isn't. Because of the 'no-compete' clause in his contract, he may not be able to send mail to 'his' patients, but you can see whoever you want. He may be just across the county line.

Worth looking into anyway.

Guest nini

The letter was from the practice he was leaving. He actually founded the clinic, so I was really surprised that he wouldn't be there anymore.

The letter says "Dr. R had regrettably, decided to pursue other medical practice endeavors, due to the nature of his plans for continued medical practice, there will not be an option to allow his current patients to follow up with him for their continued medical care. "

tarnalberry Community Regular

That letter does not mean that you can't contact him for a referral. It certain is a vague letter, and there could be *much* more behind the scenes, but I would try to get contact information on him just so you can try to get a recommendation for another doctor from him.

  • 4 years later...
Deb123 Newbie

I just got a letter from my primary care Dr.s office that my Dr. has left the practice and unfortunately where he has gone to it will not be an option for his current patients to follow him. I am soooooooo upset by this. The Dr.s that are left at this practice are ok but NOT THE SAME. He's the one that spent over an hour with me the first time I went to him. He's the one that ran all kinds of tests to try and figure out what was wrong (when another Dr. in the practice practically blew me off and told me I just needed a high fiber WHOLE WHEAT diet :angry: ) He's the one that eventually determined that I needed to see a GI and sent me to the Dr. that dx'ed Celiac... He's the one that has been in charge of all of my follow up care and visits... WHAT AM I GOING TO DO???? :(:(:(

I would suggest that you contact the Holistic Medical Society and ask for a list of doctors in your area that specialize in treating Celiac Disease. This is an easy way to find someone that at least thinks like you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I would suggest that you contact the Holistic Medical Society and ask for a list of doctors in your area that specialize in treating Celiac Disease. This is an easy way to find someone that at least thinks like you.

Deb, you might not have noticed, but the post is 5 years old. The original poster may be long gone. Still, it's good advice.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.