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- Scott Adams replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Digestive symptoms yet negative celiac screening
@Irishgirl5, it does sound possible for those numbers to fluctuate a bit, especially when they are near the upper end of normal, but ongoing symptoms still make it understandable that you are concerned. The fact that his tissue transglutaminase immunoglobulin A is still technically in range does not always make the picture feel any clearer, especially with... -
- Scott Adams replied to Stegosaurus's topic in Super Sensitive People2
trehalose intolerance
@Stegosaurus, that is really interesting, and it sounds like you have done a lot of careful digging into what might be driving your symptoms. The connection between dysbiosis, food reactions, and specific additives or sugars is clearly complicated, but your point about hidden ingredients and individual tolerance makes a lot of sense. It is also encouraging...- common additive
- dysbiosis caused enzyme loss
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- Scott Adams replied to JennMitchell79's topic in Traveling with Celiac Disease1
Dreams Macao Beach in Punta Cana DR
I've not been there before, but it looks fabulous! In general, 5 star resorts like this are typically very good at handling gluten-free needs, so I believe you'll be in good hands. I would still pay close attention of the foods offered, and ask the staff questions if something looks off. -
- Scott Adams replied to glucel's topic in Super Sensitive People15
iron digestibility
That all sounds reasonable, especially with kidney concerns in the picture, and it makes sense that you would be cautious about increasing anything too aggressively. It is encouraging that the gluten-free diet seems to have helped with the microscopic blood in your urine, even if other kidney issues are still ongoing. Your meal pattern also stands out, because... -
- Scott Adams replied to Sheila G.'s topic in Related Issues & Disorders10
No red meat
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By Scott Adams · Posted
@Irishgirl5, it does sound possible for those numbers to fluctuate a bit, especially when they are near the upper end of normal, but ongoing symptoms still make it understandable that you are concerned. The fact that his tissue transglutaminase immunoglobulin A is still technically in range does not always make the picture feel any clearer, especially with tummy pain, nausea, constipation, and diarrhea still going on. Anxiety can certainly add to gastrointestinal symptoms, but I can see why you would not want to assume that explains everything. It sounds like keeping an eye on things and being cautious with diet changes makes sense, especially if symptoms continue. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
By Scott Adams · Posted
@Stegosaurus, that is really interesting, and it sounds like you have done a lot of careful digging into what might be driving your symptoms. The connection between dysbiosis, food reactions, and specific additives or sugars is clearly complicated, but your point about hidden ingredients and individual tolerance makes a lot of sense. It is also encouraging that you found something, like the fermented Florastor approach, that seems to help you tolerate certain foods better. Posts like this are helpful because they remind people that sometimes the reaction is not just about the obvious ingredient on the label. -
By Scott Adams · Posted
I've not been there before, but it looks fabulous! In general, 5 star resorts like this are typically very good at handling gluten-free needs, so I believe you'll be in good hands. I would still pay close attention of the foods offered, and ask the staff questions if something looks off. -
By Scott Adams · Posted
That all sounds reasonable, especially with kidney concerns in the picture, and it makes sense that you would be cautious about increasing anything too aggressively. It is encouraging that the gluten-free diet seems to have helped with the microscopic blood in your urine, even if other kidney issues are still ongoing. Your meal pattern also stands out, because if you are eating a lot of bread and cereals at night, adding a bit more protein or something more filling may very well help with appetite and overall balance. It sounds like you are thinking this through carefully, and given everything you are managing, that seems like a very sensible approach. -
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