Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm So Stupid

lorka150

By lorka150
in Coping with Celiac Disease

Recommended Posts

lorka150 Collaborator
lorka150
Posted

Well, I kept getting sicker and sicker and hit a really low weight of 88lbs. (I am 5'7'').

Turns out, I've been consuming gluten this whole time - Bob's Red Mill carob powder is not gluten free. I'm a little irritated at my stupidity.

Could this have been why I am having so much trouble getting better? Because of one thing?!!!

I looked back at my food journals and 90% of my really bad days I had eaten that the same day or the day before.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


burdee Enthusiast
burdee
Posted

I was soooo sorry to read that you unintentionally continued to consume gluten in the Bob's Red Mill Carob Powder and kept getting symptoms and losing weight. But please don't be too hard on yourself. Your physical symptoms are enough punishment. Many of us have accidentally ingested gluten whether by cross contamination or not reading labels carefully or trusting restaurants or family 'cooks'. 8 months after I went gluten free (6 months after my diagnosis) I discovered that I had been consuming a 'gluten' pill 3 times a day when I took digestive enzymes with malt diastase (BARLEY :blink: )!! A year before I suspected celiac, a naturopath recommended those to help with my 'malabsorption' symptoms. He even suggested celiac, but I said I didn't have diarrhea. He wasn't knowledgable enough to tell me celiacs get constipation too. <_< Anyway I continued ingesting that barley for 8 months causing continuing symptoms. Even after eliminating that, I still had some gluten, dairy and soy (all my intolerances) slips regularly enough to feel crappy until I figured this all out. Now at 20 months after I first TRIED to go gluten-free (and then DF/SF) I'm FINALLY learning what 'normal' feels like. Keep gluten sleuthing ... You'll get healthy soon. ;)

BURDEE

jerseyangel Proficient
jerseyangel
Posted

Sorry that you have felt unwell for so long. It is so frusterating when we are trying so hard and being so careful and still something gets past us. You are so not alone. We all go through that. It really just takes some time to figure out what is safe. Yes--that one thing could be the thing that has made you sick this whole time, providing there was no other gluten getting in. A tiny amount can cause a reaction--it really dosen't matter what the actual food was. Hopefully now you'll be feeling much better :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,781
    • Most Online (within 30 mins)
      7,748
    Jackie Vogel
    Newest Member
    Jackie Vogel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Rogol72
      Build muscle back feeling weak?

      By Rogol72 · Posted

      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
    • Scott Adams
      What apps or tech tools help you manage celiac disease?

      By Scott Adams · Posted

      I am just sharing this newly launched app:  
    • Scott Adams
      Build muscle back feeling weak?

      By Scott Adams · Posted

      It's great to hear that eliminating gluten has helped alleviate symptoms like eye burning, which is a significant and positive change. The first and most important step is to ensure you're consuming enough protein throughout the day to support muscle repair and growth, which can be challenging with a busy schedule. Since you're already physically active at work, adding focused strength training just 2-3 times per week can make a major difference. Bodyweight exercises like squats, push-ups (modified if needed), and lunges, or using resistance bands at home, are excellent, efficient places to start. Remember, consistency with these short sessions and prioritizing post-workout recovery, including good sleep and hydration, are just as crucial as the workouts themselves. It's a smart, gradual process at any age.
    • Scott Adams
      Glutened

      By Scott Adams · Posted

      That's terrible! This article, and the comments below it, may be helpful:    
    • Scott Adams
      suggest gluten free food

      By Scott Adams · Posted

      Trader Joe's carries a good variety of affordable gluten-free foods like bagels, hamburger buns, pasta, etc. I like Franz Gluten Free bread, which is available at my local Costco. Food For Life and Little Northern Bakehouse (advertisers here) also make excellent gluten-free breads. Costco also sells gluten-free pizzas, crackers, gravy, etc.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.