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Blood testing results are they positive

Lisanorton
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Lisanorton Newbie
Lisanorton
Posted

I was recently tested and my Gliadin Antibody, IgA came back as a 91.0.

Reference range see below    

(NOTE)
<20 Units Negative
20-30 Units Weak Positive
>30 Units Strong Positive

 

so is this showing I am positive for celiac? I can’t seem to get a response from my drs. 

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cyclinglady Grand Master
cyclinglady
Posted

Yes, it is a positive!  The next step is an endoscopy to obtain intestinal biopsies.  This will help solidify your diagnosis, set a benchmark for follow-testing, rule out other possible concurrent issues (e.g. H.Pylori, cancer, SIBO), and perhaps help you to adhere to a gluten free diet, if the biopsy is positive.  I can tell you that I tested positive to only the DGP IgA when I was diagnosed, so you do not need a positive on all the celiac antibodies tests.    Anemia was my only symptom at the time.  

Keep eating gluten until you have had that endoscopy!  This is critical!  Take care.

 

Lisanorton Newbie
Lisanorton
Posted
  • Author

I did an endoscopy and the dr said he doesn’t see any signs of celiac. Does this mean my blood test was wrong and I don’t have celiac. I am really confused at this point

cyclinglady Grand Master
cyclinglady
Posted

My doctor did not “see” anything either on my first endoscopy.   His scope was not the “latest and greatest”.  I had to wait for the pathologist’s report as damage can be microscopic (those villi are tiny).  

Lisanorton Newbie
Lisanorton
Posted
  • Author

The pathologist report didn’t show anything either. 

cyclinglady Grand Master
cyclinglady
Posted

Okay.  Can you clarify that the Anti-Gliadin test had the word Deaminated in the test wording?   

Lisanorton Newbie
Lisanorton
Posted
  • Author

I do not see that word in there

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cyclinglady Grand Master
cyclinglady
Posted

The anti-gliadin test is older and is no longer in use and was replaced by the Anti-Deaminated gliadin peptides test.  You should verify which test was given.  Then check the pathologist’s report to see how many samples were takenand from what locations.  Doctors should take more than four as damage can be sparse.  The small intestine is the size of a tennis court and damage can often be out of reach of the scope.  

Did the GI advise you to go gluten free?  

hookedongolf Newbie
hookedongolf
Posted

Can I ask if any of you are on Medicare and whether Medicare paid for that $972.00 test?

Lisanorton Newbie
Lisanorton
Posted
  • Author

I am not on Medicare. 

cyclinglady Grand Master
cyclinglady
Posted

I am sorry that your test was inconclusive.  Celiac disease can be so maddening!  ?. But by going gluten free and retesting, you might be able to solidify your diagnosis and FEEL better.  

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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