What to do before during and after testing for celiac disease

[B.R.sky]

I recently received results from a DNA test saying I have a very high risk to develop celiacs disease. Also a blood test to suggest a very high possibility of having celiacs disease. On a waiting list now to receive a biopsy via endoscopy, but my Doctor said he can’t diagnose me with celiac disease until the biopsy comes back and also suggested to start a gluten-free diet. Isn’t that starting to heal my gut before the endoscopy ? My fear is that the endoscopy comes back negative regardless of me eating gluten or not. At this point I want to feel normal again. 

Can anyone suggest what to do ? 

[GFinDC]

Hi,

Yes, you should keep eating gluten until all testing is done.  The doctor is wrong in this case.  That's not unusual though, many doctors kind of suck at diagnosing celiac disease.  That's partly why most people with celiac disease are undiagnosed today.

[cyclinglady]

How long before you see a GI?  For example, it has been reported that in some areas of Canada, the wait time for a GI appointment or endoscopy is months and months!  In that case the patient can go gluten free and then do a two to four week gluten challenge.   A gluten challenge can make you very sick though.  The longer you are away from gluten, the worst your reaction to it can be (as reported by members).  Consider calling to see if there are any cancellations.  

 

[B.R.sky]

2 hours ago, cyclinglady said:

How long before you see a GI?  For example, it has been reported that in some areas of Canada, the wait time for a GI appointment or endoscopy is months and months!  In that case the patient can go gluten free and then do a two to four week gluten challenge.   A gluten challenge can make you very sick though.  The longer you are away from gluten, the worst your reaction to it can be (as reported by members).  Consider calling to see if there are any cancellations.  

 

Hello cyclinglady,

i did try to get in touch with the GI clinic and the waiting list is 12-18 months long while I am on it for only 6months now. I am in Ireland and I am actually on the waiting list of two different hospitals. 

Thank you for your help.