Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results

amaier41112
 Share

Recommended Posts

amaier41112 Newbie
amaier41112
Posted

Hi, I'm sure this topic has already been covered, but I was just wondering if anyone else had a positive tissue transglutaminase iga antibody test but negative biopsy? My Doctor determined that because the biopsy came back negative, that I don't in fact have Celiac's disease. What else could it be if it's not Celiac's?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

It is quite possible for damage to get missed with the biopsy. How many did the doctor take? He should have taken about 6. Also is the IGA test the only test he did out of the celiac panel? As far as I know a positive result in that test is specific to celiac. Did the doctor tell you to do a strict trial of the diet? If not he should have. Do read the Newbie 101 thread at the top of the Coping section and get yourself strictly gluten free. Some doctors will diagnose based on relief of symptoms on the diet and your antibodies going down. Ask any questions you need to about all you need to keep yourself safe as being gluten free involves more than just the foods you choose. I hope you are feeling better soon.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,124
    • Most Online (within 30 mins)
      7,748
    Kihance
    Newest Member
    Kihance
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • CeliacMom79
      tTg at 234 at 6 month bloodwork

      By CeliacMom79 · Posted

      Hi. Sorry, his previous levels were >250 and we do not know how high they were. So yes, "off the chart". By 'detectable' I just meant that at 234 we now actually have a number as a baseline that we can measure future labs against. All his other liver test functions have been normal.  Just the elevated ALP. Thank you.
    • NoGlutenCooties
      gluten-free in Wilmington, DE

      By NoGlutenCooties · Posted

      Hi all I'm looking for a safe place to eat in Wilmington, DE. Any ideas? Thanks Jenny
    • trents
      tTg at 234 at 6 month bloodwork

      By trents · Posted

      Welcome to the forum, @CeliacMom79! Not sure what you mean when you say you are pleased that his ttg levels are now at "detectable levels"? Earlier in your narrative you said they were originally above 250. Was 250 the upper limit of the scale that was used, such that you actually don't know how high they were originally, i.e. "off the charts"?  Were his other liver test functions (ALT, AST) originally elevated?
    • CeliacMom79
      tTg at 234 at 6 month bloodwork

      By CeliacMom79 · Posted

      Hello! This is my first time posting, but I have been so helped by the reading other's posts over the last 6 month. My 16 year old was diagnosed about 6 months ago with Celiac despite He had almost no symptoms aside from occasional loose stools and low weight gain. His tTg was over 250.  He also had anemia with abnormalities to his red blood cells, vD deficiency, elevated ALP and a few other nutritional findings.  He has had a couple of accidental gluten exposures in the last 6 months but overall has (as far as we know) been completely gluten free.  We scrubbed our kitchen down and replaced cookware at the time of diagnosis and our home is completely gluten-free.  We eat out only rarely and then at restaurants we know are aware of cross contamination. He is also not eating oats as a precaution until we get his numbers down. We were told by his Peds GI doc to expect normalization of his labs within 2 years. He just had his 6 month bloodwork and his tTg is now at 234.  All of his abnormal nutritional findings, the anemia and his blood counts have normalized. His ALP is still elevated (which we think may be a normal finding as he's been having a major growth spurt and further tests to check his liver function have been normal). He no longer has loose stools, he feels great and has grown 3 inches and put on about 20lbs in the last 6 months.  This all seems positive. I am happy that we now have his tTg at detectable levels, but I am wondering if anyone has had a level that is still this high 6 months post diagnosis? Thank you so much!  I appreciate this community.  
    • Zuma888
      How to interpret my genetic test results

      By Zuma888 · Posted

      Hello, These are my genetic test results: Test                                                          Result DQA1:                                                      DQA1*02 DQA1:                                                      DQA1*03 DQB1:                                                      DQB1*0302 DQB1:                                                      DQB1* HLA-DQ2 (DQA1*05/DQB1*02) :             Negative HLA-DQ8 (DQA1*03/DQB1*0302):          Positive   Is this saying I inherit DQA1*03 from one of my parents and DQB1*0302 from the other? And is one of these enough to say I have HLA-DQ8 or do I need both? Thank you.
×
×
  • Create New...