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Question About Biopsys And Blood Test

Guest tracey and emma

By Guest tracey and emma
in Parents, Friends and Loved Ones of Celiacs

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Guest tracey and emma
Guest tracey and emma
Posted

hi everyone emma had a biopsy done a few weeks ago and with her symtoms as well they have told me that they suspect celiac disease. but today they got the results of the bood test. and it came back normal. with no evedence of C/D at all. what they are saying is that this is just the on set of C/D as her villi were normal to look at as well. so hear the question....... does the blood test always come back postive to celiac if that is what it is, or is it hit and miss? in other words can the bloods in the early stages come back as normal, even though it might still be C/D? any help would be greatful as emma cons is now on holiday for the next few weeks and i am really confused as to what to think? and our dietician just said stick for the time being to gluten free, and we will talk again in the new year. thanks for your help tracey and emma X X X

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VydorScope Proficient
VydorScope
Posted
hi everyone emma had a biopsy done a few weeks ago and with her symtoms as well they have told me that they suspect celiac disease. but today they got the results of the bood test. and it came back normal. with no evedence of C/D at all. what they are saying is that this is just the on set of C/D as her villi were normal to look at as well. so hear the question....... does the blood test always come back postive to celiac if that is what it is, or is it hit and miss? in other words can the bloods in the early stages come back as normal, even though it might still be C/D? any help would be greatful as emma cons is now on holiday for the next few weeks and i am really confused as to what to think? and our dietician just said stick for the time being to gluten free, and we will talk again in the new year. thanks for your help tracey and emma X X X

How old is the child? In real small childern the tests do not seem to a be all that realiable. The Bispoy needs a signifgnat amount of damage be done before it has a good chance to succed in finding celiac disease, and litle ones normaly will not have that much damage built up thats to there extremly awsome healing powers. Simular issue with the blood test.

IMO, the response to the diet is the best indicator....

Guest tracey and emma
Guest tracey and emma
Posted
How old is the child? In real small childern the tests do not seem to a be all that realiable. The Bispoy needs a signifgnat amount of damage be done before it has a good chance to succed in finding celiac disease, and litle ones normaly will not have that much damage built up thats to there extremly awsome healing powers. Simular issue with the blood test.

IMO, the response to the diet is the best indicator....

emma is 2 1/2years old the biopsys came back as haveing a problem in the intestine and they were convinced that they were consitatant with C/D. but would not confirm on this test alone. is this normal to? tracey and thanks

VydorScope Proficient
VydorScope
Posted
emma is 2 1/2years old the biopsys came back as haveing a problem in the intestine and they were convinced that they were consitatant with C/D. but would not confirm on this test alone. is this normal to? tracey and thanks

In my epxerence pediatric GI's are very gun shy about calling it celiac disease. My son was 18mos old when he got his bisopy done.

Let me say this, IMO, if you see postive results from the diet, ingore the testing.

That aside, typicaly in adults a postive biopsy is considered teh "gold standard" in America to dx celiac disease. So if your child was 20 years older, I would say NO thats not normal, but at his age, its a bit harder to tell. I would say that it is probably an overly cautius GI doc and your son problaby has it, BUT I AM NOT A DOCTOR.

You were advised to stay on the gluten-free dfiet with him, and I completely agree with that. If you see a postive change with it , then you have your answer, IMO. :D

Guest nini
Guest nini
Posted

positive dietary response is the most reliable indicator. blood tests and biopsy's can only confirm a dx of celiac, they cannot completely rule it out because it may be in the early stages, there may not be enough damage to show up in blood tests yet, the villi may not be damaged yet or they didn't take enough samples from enough areas.

I have to say ITA with Vincent... keep your child on the diet and monitor her progress... my daughter's blood work was negative or inconclusive, she DID NOT have a biopsy because her Dr. wouldn't even consider it (besides I didn't think it was neccessary) but she responded miraculously to the diet, and has horrible reactions when accidentally exposed to gluten. SO, I have my answer, and it looks like you will have yours if she shows improvement on the gluten-free diet.

VydorScope Proficient
VydorScope
Posted
I have to say ITA with Vincent...

:huh: what is "ITA" ? :mellow:

Guest nini
Guest nini
Posted

ITA = I Totally Agree :)

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