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Every Reaction is Different...

AGlenn

By AGlenn
in Coping with Celiac Disease

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AGlenn Newbie
AGlenn
Posted

Hi there, this is my first post here! I am writing it in the middle of the night because, no matter how exhausted I am, how much (dye-free) ibuprofen I take, I have the worst body aches every day can’t sleep. I’ve avoided gluten religiously for 6 years and my reactions to being “glutened”, while varied, have never been this bad. It happened 4 days ago and where my gut seems to be back to semi-normal, I’m just as sore and depressed and confused as ever. Should I try fasting? Supplements? Nothing I normally do for this is working! Help!

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Ennis-TX Grand Master
Ennis-TX
Posted

This disease is in another members words a "chameleon" over the years your symptoms will change. Each exposure can be a bit different. I started off with constipation, ataxia, extreme brain fog, and anger. Now days the ataxia is mush less, but I have straight up D for 4-6 weeks after a small exposure.

Helping the symptoms vary from person to person, the practically universal truths are easy to digest foods, either cooked to much or liquid, go easy on spices, and avoiding dairy after a exposure (consider your irritated intestines like a carpet burn on your arm, avoid spices, alcohol, and the damaged villi will not produce enough enzymes for dairy so more gas)

Some say fasting with bone broth is best, some swear by eating mashed potatoes, and rice gruel, I find no carbs stops the gas, and eating nut meal porridge and super soft mushy eggs slow cooked with almond milk and a bit of coconut flour in them to be the easiest on my stomach.

If your having constant D or vomiting consider getting more electrolytes in and plenty of water or a tea for you stomach, to keep you hydrated. Being tired and drained could also be a magnesium, b-vitamin, iron, vitamin A or vitamin D issue. Look at your diet are you getting enough greens (dark leafy chock full of vitamins A, K, meat for iron, eating enough healthy fats and nut butters? You might have to supplement with some things after researching deficiency issues and seeing what you might be low in. Remember a damaged gut is not going to absorb everything you eat, so a bit excess in somethings might be needed.

Posterboy Mentor
Posterboy
Posted
16 hours ago, AGlenn said:

Hi there, this is my first post here! I am writing it in the middle of the night because, no matter how exhausted I am, how much (dye-free) ibuprofen I take, I have the worst body aches every day can’t sleep. I’ve avoided gluten religiously for 6 years and my reactions to being “glutened”, while varied, have never been this bad. It happened 4 days ago and where my gut seems to be back to semi-normal, I’m just as sore and depressed and confused as ever. Should I try fasting? Supplements? Nothing I normally do for this is working! Help!

AGlenn,

It comes down to Histamine receptors.

Here is a good overview from the University of Bristol.

http://www.chm.bris.ac.uk/motm/histamine/jm/receptors.htm

The H4 receptor is tied to Auto-immmune reactions. And the newest Histamine receptor discovered. . .. so they are still learning alot about it.

Here is the abstract on it.

https://www.ncbi.nlm.nih.gov/pubmed/21741967

But I want to you to pay special attention to these figures (they are worth a thousand words).

It if from the full work citation but beautifully explains what is happening.

Be sure to look at all three figures.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2697784/figure/fig01/

from the abstract note this is in 2011

" Meanwhile, first histamine H(4) receptor antagonist has reached clinical phases for the treatment of respiratory diseases."

I don't know the current state of H4 receptor medicine drug development.

Let's hope they develop one for Celiac disease soon.

Here are the links for each figures for easy reference.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2697784/figure/fig01/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2697784/figure/fig02/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2697784/figure/fig03/

People with MCAS disorder are probably being affected by the H4 receptor. . . going haywire.

It the Histamine (H4 receptor) is also tied to Rheumatoid Arthritis.

I hope this is helpful but this is not medical advice.

As always “Consider what I say; and the Lord give thee understanding in all things” 2 Timothy 2: 7

Posterboy by the Grace of God,

 

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