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Advice?

dannyboy123
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dannyboy123 Newbie
dannyboy123
Posted

So for a while now I’ve been having this “periods” of illness, I’m talking extreme fatigue/lethargy, headaches, nausea, etc. It comes on suddenly and lasts for around a week. I’ve had Open Original Shared Link for all things such as deficiency, thyroid etc and all have come back fine. 

 

Yesterday I ate a foot long subway sandwich, and within 2 hours I was asleep and woke up feeling like this AGAIN. I don’t have diahorrea but I am gassy and it doesn’t smell great (gross I know). Do you guys think this could be linked to gluten? 

The thing that confuses me most is that sometimes I can eat a pizza and be fine, but then all of a sudden this happens, I eat gluten every day, so why does it happen occasionally? Does this mean it’s not gluten? I’ve had blood tests for every thing and all is fine.. I’m so confjsed

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squirmingitch Veteran
squirmingitch
Posted

It's possible it's gluten. Why off & on, off & on? It can do that until one day it doesn't stop. You say you've had blood tests for everything but have you had the celiac panel? You should get it. here's the full panel:

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA 


Also can be termed this way:

Endomysial Antibody IgA
Tissue Transglutaminase IgA 
GLIADIN IgG
GLIADIN IgA
Total Serum IgA 
Deamidated Gliadin Peptide (DGP) IgA and IgG

dannyboy123 Newbie
dannyboy123
Posted
  • Author

Hey thanks for your reply. But I thought they couldn’t test for NCGS? I think I’ve been tested for coeliacs before 

squirmingitch Veteran
squirmingitch
Posted

They can't test for NCGS. I gave you the tests for celiac. If you think you've been tested for celiac then you should get your records & make sure. Also, if you actually were tested for celiac, that doesn't mean you are good for life. Celiac can present at ANY age so if you get tested it doesn't mean you will NEVER present with celiac. So IF you DID get tested before, unless it was in the last 6 months or so, you should be tested again.

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