Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Concerned


Danijela

Recommended Posts

Danijela Contributor

Hey there!!!

I have a question re BM'S....

Or a lack of....

My stomach completly just doesn't work....

I can't even say i'm constipated....

I just don't need to go!!!

I usually just wait 3 or 4 days as long as I can and then just take something to get rid of it... cause I eat meals regularly and its not right that it just sit in there.... I feel terrible and exausted all the time and this lack of digestion is probably why... I also have this build up of air in my stomach and when ever I take a deep breath I can feel it shooting out.... its begining to bother me and my breathing.....

I read on the net that this sort of thing caused blood sugar problems which would explain the hypoglycemic attacks I have all the time.....

I have an appointment on the 11th with an allergist and hopefully he can help

however does anyone have any advice for me

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

if it's bothering your breathing, please call the doctor back and try to bump up the emergency. not going for three or four days isn't necessarily a problem, particularly if you're eating very low-residue foods (no fiber, mostly meat, etc.), but if it's causing additional problems, you're starting to get into the "should seek immediate attention" area. I wouldn't say emergency room yet - but if you start feeling very sick, experience almost any sudden, significant major change, or the like, it might then be time for that. please try to get that appointment moved up, or see your regular doctor before then.

Danijela Contributor
if it's bothering your breathing, please call the doctor back and try to bump up the emergency. not going for three or four days isn't necessarily a problem, particularly if you're eating very low-residue foods (no fiber, mostly meat, etc.), but if it's causing additional problems, you're starting to get into the "should seek immediate attention" area. I wouldn't say emergency room yet - but if you start feeling very sick, experience almost any sudden, significant major change, or the like, it might then be time for that. please try to get that appointment moved up, or see your regular doctor before then.

Hey,

If I don't take somthing I never go....

I can only ususally wait 3 or 4 days before I feel really crappy and give in and take something...

the problem with my breathing is the build up of air pushing....

They wont move my appt up thats the date that the guy comes to town...

The doctors are convinced that its still anxiety....

They don't even listen to me anymore....

I'm really hoping that this guy is going to help I know him actually I use to work in the office that he comes to....

so I think he's my best bet.....

jenvan Collaborator

Wow girl...sounds like you are really getting 'backed up'...not to be gross! I think that is a big problem. I was similar before going gluten-free...and I am a firm believer that not going daily for most people is an issue--sign of poor health or a problem going on. I did not feel well when I was in that state--and I didn't really even notice it till I did begin going on a regular basis. For me there are several factors that cause constipation--not being gluten-free completely, consuming dairy and lack of fiber. So, being gluten-free/cf, consuming fiber like beans, brown rice etc, plenty of water and psyllium on occasion keep me moving along. Not going regularly, and having your intestines packed full all of the time is not good. Also, being on a cycle of laxatives, natural or synthetic, is very unhealthy too--eventually, it can lead to a dependence on them and only exacerbate the problem. What do you take for relief, as you mentioned? Ever tried psyllium?

Danijela Contributor

Hi Jen

i've never heard of that I usually just take a correctal.....

It was the allergists wife that said an intolerance and allergy were the same thing....

When I see him I hope he says different becasue I didn't think they were the same thing....

for the last week i've cut out all gluten again.....

I hope this doesn't create a problem for any testing he wants to do....

my appt is in 2 weeks

nathela Rookie
Wow girl...sounds like you are really getting 'backed up'...not to be gross! I think that is a big problem. I was similar before going gluten-free...and I am a firm believer that not going daily for most people is an issue--sign of poor health or a problem going on. I did not feel well when I was in that state--and I didn't really even notice it till I did begin going on a regular basis. For me there are several factors that cause constipation--not being gluten-free completely, consuming dairy and lack of fiber. So, being gluten-free/cf, consuming fiber like beans, brown rice etc, plenty of water and psyllium on occasion keep me moving along. Not going regularly, and having your intestines packed full all of the time is not good. Also, being on a cycle of laxatives, natural or synthetic, is very unhealthy too--eventually, it can lead to a dependence on them and only exacerbate the problem. What do you take for relief, as you mentioned? Ever tried psyllium?

:) Psyllium changed my life! Please try it ASAP! No more pain, bowel movements do happen!!

jenvan Collaborator

Dani--

I strongly encourage you to stay away from the correctol. As I mentioned, taking laxatives that frequently will only mess you up more. Psyllium is natural fiber...not synthetic and it doesn't create dependency or side effects like a drug/laxative would. Psyllium bulks up stools and carries them out. I would start taking it immediately, and stick with 100% gluten-free. What exactly are you hoping to learn from the allergist? If it is food intolerances, I would probably do a great plains or york labs. Great Plains I know will do both IgG an IgE testing. I want you to get better girl!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Son's legs shaking

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Son's legs shaking

    4. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

    5. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.