New And Lost

[Leela]

heya there. just registered. dunno if i do everything right.

ok, i start.

my best friend has been diagnosed with Celiac about two years ago but it seems it's a lot more than just that. it's all related but he's got so many diagnoses that he doesn't even know half of them.

he keeps going into anaphylactic shock. his bones are a bit fragilised, he's started to walk with difficulty.

now doctors say his chances to survive are extremly thin...

I keep checking out sites and books to get info, but i'm getting a bit lost... does anyone know why he's so screwed up and getting worse every single day?

Leela

[plantime]

If he is celiac and still consuming gluten even in trace amounts, he will continue to get sick. It could be that the damage before diagnosis was so severe that it was already too late to save him. It could also be that something entirely different is causing the decline. I am very sorry about your friend. I hope you get answers and peace with what is happening to him.

[Leela]

thanks for having tried to answer, it means a lot.

answers, maybe. peace, never.

Leela

[plantime]

Please just keep us posted.

[Leela]

I will... tho i have no clue where this is going. i dont wanna see where it's going actually.

i dunno if his diet is totally gluten free... i guess it is.

docs keep running tests tho... they have this nasty habit to take so much blood out of him that he passes out. does anyone know what they're testing?

[Leela]

me again...

he says he's getting a bit better. he can walk again!

i talked a lot with him and now he says he wont give up anymore.

d'you think prayers can do miracles?

[lovegrov]

If he's actually going into anaphylactic shock that sounds like an allergy of some sort, not just celiac.

richard

[plantime]

I have celiac and allergies, so he probably has both. It makes finding the culprits and eliminating them harder. I am glad he is starting to get better. Yes, I believe in prayer!!

[Leela]

true... i think he's got an awful lot of allergies...

prayers are all that is left...

[wildones]

I absolutely believe in prayers, and specific ones help. What is your friend's name and where does he live ? I would be glad to pray for answers and health for him. I know prayers made a tremendous difference for one of my boys that had very little hope for survival.

Lorraine

[Leela]

I've PMed you... thanks