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Need Your Opinions Please...

JessicaB

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JessicaB Explorer
JessicaB
Posted

ok. I would like to know everyones point of view on my stance. I had the blood test for celiac done on 11/15/2005. Here were the levels, IGA 1 (should be 0-4) igg 74 (should be 0-9)ttg iga 0, ttg igg 2 (should be 0-5), endomysial antibody iga 68l (should be 70-400). The doctor said usually two of the first numbers should be high for celiac but since my antibodies were low, thats why only one was high, DOES THAT MAKE SENCE???

Well.....He said the 74 is very high, most likely is has to be celiac. I recieved my biopsy results today THEY ARE NEGATIVE......!! Why???? If im in so much pain when i eat gluten why is there no damage? This has been going on since i had my daughter in july 2004??

Im going to see a specialist at the University of Maryland, Center for Celiac Research, anyone heard of that??

DOES ANYONE KNOW ABOUT THESE LEVELS???? PLEASE LET ME KNOW ASAP I WOULD LIKE TO KNOW YOUR POINT OF VIEWS. DO I HAVE CELIAC?? WHY IS THE BIOPSY NEGATIVE, I KNOW THE SPECIALIST WILL TELL ME BUT I NEED YOUR POINT OF VIEW, OF COARSE, EVERYONE HERE HAS THE EXPERIENCE AND KNOWLEDGE, THANKS A BUNCH!

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Guest nini
Guest nini
Posted

The biopsy is not perfect... It can miss damage if not enough samples are taken or if samples are taken from an area that doesn't have damage yet.

Your blood tests do show Celiac... just because the biopsy doesn't show damage YET, doesn't mean it's not headed that way. There is still so much that the medical community does not know when it comes to Celiac, and many are coming to learn that the biopsy is NOT the gold standard it once was thought to be. There are many many Celiacs who have had negative biopsies despite positive blood test results, continued to eat gluten, got sicker and then years down the road DID HAVE a positive biopsy.

The biopsy in my opinion is only valid for confirming VAST amounts of damage. For sporatic or early damage, the diagnostic ability of a biopsy is sadly limited.

Since your blood work was elevated, YES you do have Celiac, go on the diet IMMEDIATELY (since you have already had the biopsy) and keep track of any and all improvements. IMHO dietary response is the BEST indicator. Give it a good 6 months to a year before you make any judgements and make sure you are 100% gluten free.

My blood tests were enough to dx Celiac in me, I never did have the biopsy. Not going to either. The way my body responded to the Gluten Free diet was no less than miraculous.

My Dr. dx me based on blood test results and positive dietary response.

VydorScope Proficient
VydorScope
Posted

Okay, we have a very high entrance of new posters here so I hope I do not sound like a broken record when I answer these posts...

Biopsy is never ever negative. It can not in anytime, or way be negative. THat is REGUARDLESS of the skill of the doctor/lab. The proper lable for your results is "non-postive". This is a MASSIVE difference. I have a long post here some place with the details of that is so that I can dig up.

Since your blood work was elevated, YES you do have Celiac, go on the diet IMMEDIATELY (since you have already had the biopsy) and keep track of any and all improvements. IMHO dietary response is the BEST indicator. Give it a good 6 months to a year before you make any judgements and make sure you are 100% gluten free.

Exactly! DO what nini says! Thats the best move you your situtation in my non-doctor opinion. :D

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