Neg Blood Test

[natalie]

Hi everyone !

I am new here and this is my first post. My 2 year old daughter was diagnosed with Celiac Disease in November after being very ill, vomitting every night, hospitalized, unable to walk, dehydrated. Anyway, she has responded amazing to the gluten free diet. I have gone 95% gluten free in our home except for a few things for my husband , son and myself. The rest of us have decreased our gluten intake dramatically and about four weeks on very little gluten we had our blood tests done. I was shocked to see that the rest of us came back negative. Could it be that we weren't eating enough gluten to show a positive result ?

I was sure that either my son or myself had Celiac. I have had migranes, brain fog, a terrible rash on my knee that will not go away with any perscription cream, depression, stomach troubles etc. My husband can eat anything and not gain weight. Before bed ( after eating three large meals ) he makes these mega mass shakes with ice cream, a total of around 1200 cal, drinks the whole thing and goes to bed and he still can barely maintain 140 lbs. at 5'11" tall. My son just turned five and he is now at the 2 nd percentile for height and weight, he used to be much higher.

Does anyone have any thoughts or comments. My daughters numbers from her blood tests were off the charts ( over 100 I believe ). I just want to be sure that the rest of us aren't doing damage with the small amount of gluten that we eat.

Natalie

[jerseyangel]

Hi Natalie and welcome in! Glad to hear you little girl is improving. It is entirely possible that by cutting gluten out 95% for 4 weeks your blood tests would be neg. even if you were intolerant. How important are test results to you? At this point, you could try 100% gluten-free for a month or so and see how you feel. A lot of people are DX by the diet challenge alone.

[natalie]

Thanks Patty !

I agree , maybe the rest of us will try going 100 % gulten free. My son will be the toughest to convince !

Regards,

Natalie

[Becky6]

Both my daughter and I tested neg but have had great results being gluten-free! I really don't care what the tests say as long as I feel good!