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Help With Food Lists And Databases


canebreak

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canebreak Newbie

I have been diagnosed for a year. For 6 to 9 months I pretty much survived on foods labeled gluten-free at the expensive places. Also, I ate fresh meats, veges, etc. I am basically healed and back to running levels that I attained before being diagnosed.

But now I am older and wiser and I know I am missing out on some good mainstream stuff. My question is simple. How good are the food databases subscriptions like Clan Thompson and Gluten Guard? I have a demo of Gluten Guard and I must say I am a little disappointed with the demo. For Example, it says Sweet Baby Rays contains gluten.

What is the concensus on these services? Should I subscribe to one or just get satallite radio instead? Do you trust them and which is the best? I am urgently needing to cut down the time I spend worrying about food. I have a cold and I spent probably a couple of hours over the holidays looking up mucinex, cough syrup, antibiotics, etc. There is more to life. Any advice is helpful. Also, do you recommed desk top or palm.


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kathy1 Contributor

I am also thinking about purchasing the Clan Thompson material and would be interested to hear what everyone here thinks about it.

  • 1 month later...
glutenboy Newbie

I purchased Gluten Guard last week and thought I'd share my experience so far. I also purchased a PocketPC (Dell Axmin) and the SDIO bar code scanner at the same time. Please bear in mind that I'm a computer geek and a bit of gadget nut, so I might be willing to put more effort into these things than some people.

The Axim:

- Nice screen, 640x480 vs the 320x240 that some PocketPC's come with

- has CF and SDIO slots that can be used simultaneously

- has 256 meg "static" ram where GG can be installed, so I haven't needed a Compact Flash card yet

- comes with Windows Mobile 5.0, includes Word Mobile or something like that

SDIO Bar Code Scanner

- this is the exact one supported by GG

- install software, plug it in, generally just works - except with GG. More on that below

Gluten Guard

I purchased GG from celiac.com, because I like supporting people who provide free resources like this web site. That does add a small complication to the support process, becuase if you email the GG people directly they say to email Scott first, and then he forwards the question on to them, and then they reply. But, the one question I've had so far did get answered, though it took a little longer than it might have if I bought from the GG people directly.

GG has a simple interface - if you have a scanner, you hit scan (with the stylus), aim it at the product, and it reads it. If you don't have a scanner, you bring up a software keypad and enter the UPC code with the stylus. Either way, once entered it searches the database for a match. If there is one it gives you green, yellow, or red; if not, it tells you. Found or not, you can enter a note.

For yellow or red items, you can ask for details on why the product gets that status. This is nice because you can make a judgement call, especially for the yellow items, on whether or not to buy the product. As they say, it's not 100% accurate. So by looking at the exact reasoning you can make an informed decision. It can also educate you about ingredients that you may not know contain gluten (yellow or caramel coloring, for example).

It's definitely not 100% accurate though. One example is disodium X, where X could be guanylate, inosinate, or Wheat Germamido. From what I can tell both from internet searches and a gluten-free soup can label, the first two are OK and the third contains gluten. GG flags anything that contains any disodium though - erring on the side of caution. I guess that's better than saying gluten is OK, but it underscores that this is really a tool to help you make decisions - not the definitive resource that we might hope for.

About the bar code problem I alluded to: I cannot get the bar code scanner to work with GG. It works great with other PocketPC apps, but when I use it with GG it always comes up with one of two products, even when the number being scanned is a valid product in the database. Windows Mobile5 and the 640x480 resolution are not listed as supported by GG though, so this could be a case where GG needs to be updated for the latest OS. I have not yet contacted GG about this, so it could be something else too. I can't complain too much about this because I knowingly bought something aside from the exact supported configuration. If you really need the bar code scanner to work, I'd buy the exact supported configuration on GG's web site.

Another downside to GG - the product database seems pretty small. I'd guess that I got less than 1 in 5 hits for items I was scanning for purchase. And I don't mean silly things like pastas, breads, or cookies. I mean processed foods and soups that may or may not contain gluten, where a product like GG would be really handy. So it really is more of a helpful tool than a replacement for complete awareness of what ingredients you can and cannot eat.

And that really brings up the question - is it worth it? Since there are so many foods that won't be in the database, you'll need to know your ingredients and call companies anyway. If you get in the habit of doing that, should you spend the $80-120 for a partial solution? Especially when the new labelling regulations help identify gluten? That's a decision that only you can make.

Overall I do like having a small computer that can take shopping. I'll probably give the Clan software a try too, after my credit cards digest this purchase. Since Windows Mobile can run Word, I think I can also get the Delphi lists in there easily. There is also some cooking/recipe software for PocketPC, and that would be nice while shopping. So a PocketPC looks to be a very helpful shopping tool, with or without GG.

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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