Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Go Smile Toothpaste...


danikali

Recommended Posts

danikali Enthusiast

Hi everyone.

Well, I've been feeling so good this past week, except for a couple of little things that I noticed came back, but just a little bit.

This weird headache that I get when I eat gluten, where if I touch the right side of my head, even a piece of my hair, I get a sharp nauseating pain in the left side of my head. Well, it's back.......and I haven't changed my diet. I eat whole foods only these days. I'm very careful. The only thing that I can think of that I DID switch was my toothpaste for one day. My fiance's cousin was doing this promotion with GO Smile Toothpaste....kind of like a gourmet toothpaste. I think they may even just sell it in New York at like Sax Fifth Avenue and Lord & Taylor, dept. stores like that. Annnyway, I thought I would give it a try because his cousin told me it's like "dessert in the morning" it's tastes so good! (that alone should have told me NO)

Anyway, I looked over the ingrediants, and I didn't see anything that stood out. It didn't even say "flavor" or natural or artificial anything. But it DID say sorbitol. So I'm wondering, could this sorbitol possibly be derived from gluten grains? I know that I can't have candy these days, even the gluten free kind though, so maybe I just can't have the "sorbitol" derived from corn either.........?

Anyone else have this strange problem with sorbitol? Or could I be getting my reaction from something totally different?

Thanks!

These are the ingrediants listed:

lemonade toothpaste ingredients:

Sorbitol, Purified Water, Hydrated Silica, Glycerin, Sodium Lauryl Sulfate, Essential Oil of Lemon, Sodium Monofluorphosphate, Cellulose Gum, Lemon Extract, Sodium Benzoate, Sodium Saccharin, Titanium Dioxide , White Cranberry Powder

Maybe cross contamination of another flavor, too.......


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,262
    • Most Online (within 30 mins)
      7,748

    LiaTom
    Newest Member
    LiaTom
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Dana0207
      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
×
×
  • Create New...