Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Banned from group trips


Bonnie PA

Recommended Posts

Bonnie PA Newbie

Have others had this happen? I signed up for a group travel trip with a professional operator AFTER I told them I needed a zero-gluten (and no milk) diet and they said ok. I paid months in advance and was ready to go. One month before the trip they said their insurance company was requiring them to cancel my booking because I’m a liability: I could sue if there was an error in food preparation and I got sick they said. I offered to sign a waiver that I would not sue. No dice. I have celiacs disease. I cannot help that I need a restricted diet. Isn’t this illegal? I fear I will lose money on my airfare—and never be allowed on group tours. Suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
(edited)

I am not an attorney, but what they did is not illegal.  Even though celiac disease is a disability, the only challenge that I can recall is for celiacs (under the American Disabilities Act) who were required to purchase a dorm meal plan at universities.   The university is not obligated to provide gluten free foods and keep students safe.  But they are when they make them pay for meals.  It also applies if you are in jail!  This might be applied to a cruise where you can not get food anywhere else once you are at sea or cruise companies are smart and want your business.  

https://www.verywellhealth.com/ada-and-celiac-disease-563100

A travel company is optional.  You do not have to go on a trip with them.  Unfortunately, life today in the US is dictated by lawsuits and insurance companies.  I can see that the insurance company might be worried that you would get sick and then sue them.  Sign a waiver?  You could say later you were ill when you signed it.  I assume you would be on a bus and maybe they feed you meals or snacks on the bus or contract with restaurants who can accommodate large bus tours, but not food allergies.  

Have you contacted your travel Insurance?  Maybe they can reimburse you?  Read the fine print.  Our camper once broke down and we’re had trip insurance through RV towing (AAA).  We got reimbursed for the hotel, food, etc beside getting towed.  

Consider a cruise.  They have taken the time to train all staff and even have dedicated kitchen sections of the ship specifically for allergies.  We like cruises and have never had a gluten exposure (see cruise safety tips in other posts via a site “search”. 

Consider traveling on your own.   We mostly eat at the market/grocery store and picnic if we are unable to find a restaurant that offers gluten-free food and we have read online reviews by celiacs who have eaten there.  

Finally there are some dedicated gluten-free group tours.  I want to try one soon!  

http://bobandruths.com/

I get your disappointment.  Celiac disease is not fun, but we do have options and we have an opportunity to heal without drugs or medical intervention.  How lucky is that?  

Edited by cyclinglady
Ennis-TX Grand Master

Might see about local celiac support groups if you looking for group trips then plan for places that have good selection of options.
I often plan my trips around checking out gluten free dedicated restaurants and other bakeries who make gluten free (plus paleo and keto) baked goods. Not done this in awhile though.
For events there are expos like the nourished festival in the US that shows up in different cities and there are dedicated group tours and cruises as mentioned above.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,342
    • Most Online (within 30 mins)
      7,748

    Setb1210
    Newest Member
    Setb1210
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...