Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Testing Methodology


Packard

Recommended Posts

Packard Newbie

So many people have eliminated so many foods from their diets that it is scary.

What is your food testing methodology?

I eat out a lot (lunches, breakfasts). When I get blindsided by some gluten it is often difficult to pin down the culprit. I could eliminate everything that I ate that day to be safe, but it would be too inclusive.

For example: Recently I got a bout of "unpleasantness" due to gluten ingestion. I was on pretty firm ground on everything that I ate that day. I did suspect that the chili from Wendy's was the culprit because everything else I ate that day had a safe track record. The chili is listed in Wendy's website as being gluten free, but I suspect that they have different vendors for different parts of the country.

To confirm my suspicion I carefully monitored everything that I ate another day and only ate items that I was sure were gluten free, plus I had a bowl of chili. The results were convincing.

But if you eliminate something each time you get ill without re-testing you are going to end up with nothing left to eat.

I eliminated dairy in the beginning because I had no clue what was causing my problems. But there is a definitive test for dairy and that came back negative. Ice cream is now back on my menu (I need something to replace the brownies).

So what is your testing procedure? And how confident are you that your list of verboten foods is a relevant one?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



4getgluten Rookie

This is tough one. Mostly I try to only add one "new" food a day, and then if I feel ill, I assume it was that food. I admit I don't very often go back and try that food again - it's just not worth it to me. Also, I don't eat out very often, so that makes it easier to know exactly what I'm eating. I find eating out to still be tricky.

As for brownies.... the Gluten-Free Pantry makes a good mix. I make them all the time and keep them in the freezer. I have even served them to my gluten eating friends, who loved them! They couldn't believe they were gluten-free.

lonewolf Collaborator
The chili is listed in Wendy's website as being gluten free,

My husband used to work at Wendy's (a long time ago, granted). He says that there's no way it's gluten free. Cross contamination issues.

Liz

tarnalberry Community Regular

You have to have completely knowledge of what you are ingesting if you're going to determine what foods to eliminate - that means bringing your own, self-packed lunch and not eating out until you've finished testing.

A more rigorous approach would be to make a menu - for a week or two, at least. eat that menu, record your symptoms along with the foods. then, when that time period is over, eat the exact same menu again, only adding in a food you want to test - only one food - recording your symptoms along with the foods. then, go back to the original menu. it's time consuming, but the life-span of the body's digestive processes isn't hours or a few days, so there's not much getting around it being time consuming.

CeliaCruz Rookie
I eat out a lot (lunches, breakfasts). When I get blindsided by some gluten it is often difficult to pin down the culprit. I could eliminate everything that I ate that day to be safe, but it would be too inclusive.

I found that cross-contamination issues throw a monkey wrench into my food testing methodology, so I stopped eating out altogether. For instance, McDonald's fries are supposed to be gluten-free but sometimes they bother me and sometimes they don't. So I had to eliminate them just to be safe. Now that everything I eat is something I've prepared myself, I can eliminate cross contamination as a consideration. If I get glutened, I can consult my food log and know that something I ate recently made me sick and it had nothing to do with random flour on a kitchen work surface or breadcrumbs in the peanut butter etc. I've learned a lot that way. It's a pain in the ass -- especially if you have a full time job -- but I'm trying to think of it as a learning experience that will pay off someday.

marciab Enthusiast

This diet sucks, BUT, I have to admit, it has helped tremendously. I no longer have the bouts of D. I don't have that constant pain in my abdomen. And I stopped being hyperactive the same day I stopped the gluten. And I didn't even know I was hyper until I stopped being hyper. Duh !! I just thought I was antsy.

I cook foods in a large quantity and freeze them, so I can just pull them from the freezer when I am hungry. Millet, buckwheat, quinoa and brown rice all freeze well. As do beans. And I keep some gluten free smoothie mixes and fruits to take with me while I am on the go. I will add plain frozen veggies to any meal. I'm still working on the gluten free bread. My motto is "If I cook it, no matter what it looks like, I will eat it". I draw the line when it comes to any burnt, though.

I keep messing up by adding little things for flavor. I saw where sometimes people who are sensitive to dairy can tolerate yogurt. SO, I added yogurt and calamata olives to some of my meals (saw this on the food channel) ... yummm... but I got cocky and added cashews too. So now, I have to go back and see which of these ingredients really nailed me. I suspect the cashews.

Oh, well ... it was fun while it lasted ...hang in there ... marcia

Carriefaith Enthusiast
I did suspect that the chili from Wendy's was the culprit because everything else I ate that day had a safe track record. The chili is listed in Wendy's website as being gluten free, but I suspect that they have different vendors for different parts of the country.
A Canadian list that I saw indicated that Wendy's chili can be contaminated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.