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Advice Please

Pipes

By Pipes
in Coping with Celiac Disease

Recommended Posts

Pipes Newbie
Pipes
Posted

Hi all,

I've been real sick for several months going to doctor to doctor and being told it's depression causing my symptoms, fatigue, bloated, gas, fuzzy head, weight loss...Finally, I went to a gastro doc who believes it is celiac. Going for biopsy next week. My question has to do with work. For several months I was so sick I could barely function. Having no diagnosis I dragged myself to work. Now my managers are telling me that I am lazy and unproductive and maybe my feeling sick is in my head. I've worked in this company for twenty years and never had any complaints about my work, always compliments. Now these managers are threatening to get rid of me. Can't afford to lose my job. My question is...Is Celiac disease considered a disability? I really need to protect myself at work. Thank you so much for listening.

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minibabe Contributor
minibabe
Posted

I dont know if it is......I have had problems with my insurance company paying for doctor vists and some of the random testing. I see a nutritionists and I have to pay out of pocket because my Insurance company does not believe that what I have is really a problem.

I know for a fact that my insurance company does not reconize what I have to be a real mediacal issue.

I wish you the best of luck and if you find anything out let us know, but I would call the your insurance company to see if they reconize it.

Good Luck and I hope that you feel better soon :)

Amanda NY

Canadian Karen Community Regular
Canadian Karen
Posted

Hi Pipes,

Welcome to the board! I hope you find all your answers here and any questions you might have, feel free to ask ANYTHING! There is no question too stupid to ask, we have all been there done that!

In regards to your question about disability, I am currently on it but I live in Canada and I am covered through my work (I am on long term disability right now). It is the combination of celiac disease and collagenous colitis that has me off since my collagenous colitis has not been able to be brought under control. I basically have severe fecal incontinance. I basically go 20 - 30 times a day and I have at the most 10 second to get to the bathroom once the urge hits..... I basically feel like I am a prisoner in my own home, it is very difficult to go out with this..... Also, it is very nocturnal, keeping me up most of the night.

Here is a link regarding disability that you might find interesting......

Open Original Shared Link

Welcome aboard!

Karen

nettiebeads Apprentice
nettiebeads
Posted
Hi all,

I've been real sick for several months going to doctor to doctor and being told it's depression causing my symptoms, fatigue, bloated, gas, fuzzy head, weight loss...Finally, I went to a gastro doc who believes it is celiac. Going for biopsy next week. My question has to do with work. For several months I was so sick I could barely function. Having no diagnosis I dragged myself to work. Now my managers are telling me that I am lazy and unproductive and maybe my feeling sick is in my head. I've worked in this company for twenty years and never had any complaints about my work, always compliments. Now these managers are threatening to get rid of me. Can't afford to lose my job. My question is...Is Celiac disease considered a disability? I really need to protect myself at work. Thank you so much for listening.

How big is your company? If it has more than 50 people, you should talk to the HR about FMLA and see if there is a way around your illness until you get a proper dx and get healthy again. Unfortunately, Celiac isn't considered and disability because it doesn't affect (supposedly) your ability to do your job. Good luck and keep us posted!! No matter what your biopsy results are, I would highly recommend the gluten-free diet the minute you're done with the procedure. Didn't the GI do a blood panel? Anyhow, I do sincerely hope you are better soon.

Annette

Guest katzmeow21
Guest katzmeow21
Posted
Hi Pipes,

Welcome to the board! I hope you find all your answers here and any questions you might have, feel free to ask ANYTHING! There is no question too stupid to ask, we have all been there done that!

In regards to your question about disability, I am currently on it but I live in Canada and I am covered through my work (I am on long term disability right now). It is the combination of celiac disease and collagenous colitis that has me off since my collagenous colitis has not been able to be brought under control. I basically have severe fecal incontinance. I basically go 20 - 30 times a day and I have at the most 10 second to get to the bathroom once the urge hits..... I basically feel like I am a prisoner in my own home, it is very difficult to go out with this..... Also, it is very nocturnal, keeping me up most of the night.

Here is a link regarding disability that you might find interesting......

Open Original Shared Link

Welcome aboard!

This is off the subject but I am curious as to whether you have ever tried the Diet from the Book " Breaking the Vicious cycle" by Elaine Gottschall . She was Canadian, had a daughter with severe digestive issues and studied up on this and all digestive issues and created something called the SBD diet. Maybe it could help you.

regards MJ

Karen

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