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Help, I Need Answers And I'm Scared

honedo

By honedo
in Coping with Celiac Disease

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honedo Newbie
honedo
Posted

I have had problems with bloating for about 6 years. First I was told it was because I had fibroids, then a couple of years later my Dr. had me do an upper GI and told me I had acid reflux. Then in December my gas and bloating got so bad he ran some blood tests on me and a food allegy test came back and Jan 12th he told me I have an allergic reaction to wheat. The IgE shows .90 KU/L which states a moderate level.

He told me to go on a wheat free diet and he would have to do some research and call me (I'm still waiting). Since then I've found out about Celiac Disease. I also have hypothyroidism.

It seems to explain the bloating. I've been trying to cut all wheat, oats and barley and look for the hidden glucose in the ingredients but it seems so hard and overwelming! I felt better for a few days but then the bloating is back. I used taco seasoning today, Is there something in the spices? Does it take a while to feel relief, maybe I'm too anxious but the reason I'm scared is because all the sudden I feel aches and pains and I've lost about 5 lbs in the last two weeks.

Is it a common symtom to only have bloating with this?

Any help would be much appreciated!!

Also where can I get a list of all the safe name brands in the store?

Thanks!

Kirsten

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Posted

Hi Kirsten- If you post your email I will send you the Delphi gluten free list which has 70 pages of information. Or if you don't want top post your email, email me at babrennanov@gmail.com and I'll send it to you. It could very well have been the taco seasonings- a lot of them have fillers that could contain gluten. For future reference, Mccormack's brand spices (including their seasoning packets for taco and chile) will clearly list any gluten ingredients. I am micro-sensitive and haven't had a problem with their taco or chili mix. but remember to ALWAYS read labels!

Bloating is VERY common with this as well as weight loss, acid reflux. I have had all 3. Hang in there, Beverly

Jnkmnky Collaborator
Jnkmnky
Posted
I have had problems with bloating for about 6 years. First I was told it was because I had fibroids, then a couple of years later my Dr. had me do an upper GI and told me I had acid reflux. Then in December my gas and bloating got so bad he ran some blood tests on me and a food allegy test came back and Jan 12th he told me I have an allergic reaction to wheat. The IgE shows .90 KU/L which states a moderate level.

He told me to go on a wheat free diet and he would have to do some research and call me (I'm still waiting). Since then I've found out about Celiac Disease. I also have hypothyroidism.

It seems to explain the bloating. I've been trying to cut all wheat, oats and barley and look for the hidden glucose in the ingredients but it seems so hard and overwelming! I felt better for a few days but then the bloating is back. I used taco seasoning today, Is there something in the spices? Does it take a while to feel relief, maybe I'm too anxious but the reason I'm scared is because all the sudden I feel aches and pains and I've lost about 5 lbs in the last two weeks.

Is it a common symtom to only have bloating with this?

Any help would be much appreciated!!

Also where can I get a list of all the safe name brands in the store?

Thanks!

Kirsten

Glucose is sugar. You can have glucose. It's just gluten that you can't have. Beware of the word MALT as well as wheat, oats, barley, rye, spelt, kamut... call and confirm the "source" of Modified Food Starch as it could be derived from a gluten containing source. I use the company, Kinnikinnick for all of my bread products.. There is a link below in my sig. Check your lip gloss for wheat germ oil, check your other bath products as well. Wheat free doesn't equal gluten free.

honedo Newbie
honedo
Posted
  • Author
Hi Kirsten- If you post your email I will send you the Delphi gluten free list which has 70 pages of information. Or if you don't want top post your email, email me at babrennanov@gmail.com and I'll send it to you. It could very well have been the taco seasonings- a lot of them have fillers that could contain gluten. For future reference, Mccormack's brand spices (including their seasoning packets for taco and chile) will clearly list any gluten ingredients. I am micro-sensitive and haven't had a problem with their taco or chili mix. but remember to ALWAYS read labels!

Bloating is VERY common with this as well as weight loss, acid reflux. I have had all 3. Hang in there, Beverly

Hi Beverly,

Thank you for the info. My email address is honedo10@sbcglobal.net. I did use Mccormack's but maybe it was something else. I've felt bloated all day today so far, I made an appointment for tomorrow, I'm hoping he'll have more answers for me or can send me to a Gastroenterologist.

Kirsten

Glucose is sugar. You can have glucose. It's just gluten that you can't have. Beware of the word MALT as well as wheat, oats, barley, rye, spelt, kamut... call and confirm the "source" of Modified Food Starch as it could be derived from a gluten containing source. I use the company, Kinnikinnick for all of my bread products.. There is a link below in my sig. Check your lip gloss for wheat germ oil, check your other bath products as well. Wheat free doesn't equal gluten free.

Opps, I meant gluten and typed glucose. Thanks for the info! I didn't know about Malt.

par18 Apprentice
par18
Posted

Kirsten,

I understand your concern. The thing that helped me the most in the beginning of this diet was to develop a plan. I tried to get a certain amount of naturally gluten free foods and stick to them for at least a couple of weeks to see how I responded. Although it seemed like I was eating a lot of the same things for breakfast and lunch, the intent was to make sure I did not ingest "any" gluten. I don't think I ate anything like tacos for the first few months. The most I varied my menu was during dinner. I would rotate the type of meat and few vegetables. I also kept a list of everything I ate and when I ate it. If it would help I think you should write down a sample menu for a week at a time and try to stick to it. I'm sure there were times when my wife thought I was paranoid because I would not try seasonings other than salt and pepper. Once again I wanted to be sure I was doing it right. In my case my body started to respond to the diet in only a few days. I no longer had the bloating, reflux, gas and diarrhea. The absence of these symptoms made sticking to the diet worthwhile. I understand now 9 months later that this diet was not overwhelming or hard. It was and still is only one thing to me and that is "inconvenient". The fact that I feel so much better physically is worth the inconvenience. Good luck to you.

Tom

honedo Newbie
honedo
Posted
  • Author
Kirsten,

I understand your concern. The thing that helped me the most in the beginning of this diet was to develop a plan. I tried to get a certain amount of naturally gluten free foods and stick to them for at least a couple of weeks to see how I responded. Although it seemed like I was eating a lot of the same things for breakfast and lunch, the intent was to make sure I did not ingest "any" gluten. I don't think I ate anything like tacos for the first few months. The most I varied my menu was during dinner. I would rotate the type of meat and few vegetables. I also kept a list of everything I ate and when I ate it. If it would help I think you should write down a sample menu for a week at a time and try to stick to it. I'm sure there were times when my wife thought I was paranoid because I would not try seasonings other than salt and pepper. Once again I wanted to be sure I was doing it right. In my case my body started to respond to the diet in only a few days. I no longer had the bloating, reflux, gas and diarrhea. The absence of these symptoms made sticking to the diet worthwhile. I understand now 9 months later that this diet was not overwhelming or hard. It was and still is only one thing to me and that is "inconvenient". The fact that I feel so much better physically is worth the inconvenience. Good luck to you.

Tom

Tom

Thanks for the advice. And here I was thinking I was paranoid. Your right I'll stick to the basics for a while. It will be so great to feel better!

Kirsten :)

ebrbetty Rising Star
ebrbetty
Posted

Hi Kirsten, as you know from reading my post, I'm new too this too and having trouble, I just wanted to say I hope you feel better real soon. lots of helpful ppl here, we should be ok ;) I agree, its scary at times.

hugs, Betty

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Kirsten and Betsy- My computer is offline today (I'm on my hubbies) but if you both send me an email to babrennanov@gmail.com to remind me to send you the Delphi list I will send it out to you as soon as I get reconnected to the Internet. thanks, Beverly

ebrbetty Rising Star
ebrbetty
Posted

thank you so much for the offer, its a great site and I go there often to look up products.

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