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- knitty kitty replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease34Refractory Celiac disease - what to do
@ehb Great you're going to start the AIP diet! I know it's scary and stressful, but you'll soon start feeling better. It's a challenge, but you can make it. Do ask for a Erythrocyte Transketolace test which tests for Thiamine level. I hope your Vitamin D level is between 70 and 100 nmol/L. In this optimal range, Vitamin D can act like a... -
- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease34Refractory Celiac disease - what to do
@knitty kitty I have an appointment to go over the results tomorrow. Vitamin D was in the normal range. I’ve decided to start the gluten contamination elimination diet, while avoiding nightshades as recommended by the AIP. I am still hoping to get support from a nutritionist or advice from the doctor about supplements to make sure I’m getting enough nutrients. I’... -
- dixonpete commented on dixonpete's blog entry in Pete Dixon4Father, it's been some time since my last hookworm larvae innoculation
I read a research article today about how hookworms are being considered as a standard of care of colitis. Dunno about them used for obesity treatment though. The first thing I did once I figured out I wasn't reacting to gluten anymore was to head for the bakery isle. It had been 13 years..- 1
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- RMJ commented on dixonpete's blog entry in Pete Dixon4Father, it's been some time since my last hookworm larvae innoculation
Dixonpete, I thought of you when I saw this article, although it may not have anything new for you. Worm inspired treatments inch towards the clinic -
- cristiana replied to wellthatsfun's topic in Coping with Celiac Disease3confirmed via biopsy, quite depressed
We've definitely all had such thoughts. But as Scott says, it does get easier with time. I'm not sure where you are posting from but in England where I live, over the last ten years or so most things I missed at first now have gluten free substitutes. I still miss Twix bars, and chocolate Penguins (a type of biscuit) but I'm hoping sooner or later someone...- 3
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By knitty kitty · Posted
@ehb Great you're going to start the AIP diet! I know it's scary and stressful, but you'll soon start feeling better. It's a challenge, but you can make it. Do ask for a Erythrocyte Transketolace test which tests for Thiamine level. I hope your Vitamin D level is between 70 and 100 nmol/L. In this optimal range, Vitamin D can act like a hormone and regulate the immune system. Vitamin D 3 is the form that the body can utilize well. I was prescribed the synthetic firm D2 and my body didn't like it. I know getting my Vitamin D up in the eighties made a world of difference to me. My depression improved and I felt so much better at higher levels. I prefer Life Extension brand for many vitamins. The important thing is to read the label and watch out for fillers like rice flour. This may help. Keep us posted on your progress! -
@knitty kitty I have an appointment to go over the results tomorrow. Vitamin D was in the normal range. I’ve decided to start the gluten contamination elimination diet, while avoiding nightshades as recommended by the AIP. I am still hoping to get support from a nutritionist or advice from the doctor about supplements to make sure I’m getting enough nutrients. I’m still having a hard time sorting through all of the different brands and possible combinations
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We've definitely all had such thoughts. But as Scott says, it does get easier with time. I'm not sure where you are posting from but in England where I live, over the last ten years or so most things I missed at first now have gluten free substitutes. I still miss Twix bars, and chocolate Penguins (a type of biscuit) but I'm hoping sooner or later someone will create a decent substitute for them! One thing that I remember my husband said to me when I was feeling down one day was: "Why don't you try to think of all the things you can still eat, rather than the things you can't?" The list is long, and it did help - sort of!
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By Scott Adams · Posted
It looks like they are naturally gluten-free, but not labeled gluten-free. https://www.quakeroats.com/products/hot-cereals/grits/instant-grits-plain -
By Scott Adams · Posted
I’m so sorry you’re feeling this way—your emotions are completely valid. A celiac diagnosis, especially at your age, is a huge adjustment, and it’s okay to grieve the foods and conveniences you’ve lost. Even with a supportive partner (which is wonderful!), the mental toll is real. Many of us have been there, staring longingly at ‘forbidden’ foods while feeling isolated or frustrated. It does get easier with time, though. The initial shock fades, gluten-free substitutes become more familiar, and you’ll find new favorites. But please be gentle with yourself now. If the sadness feels overwhelming, talking to a therapist or joining a celiac support group (online or in-person) might help. You’re not alone in this—we’ve all had those ‘why me?’ moments. Sending hugs (and solidarity) your way.
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