Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Foods, Shampoos, And Other No-no's


celiac3270

Recommended Posts

celiac3270 Collaborator

I've heard that there is gluten in a lot of places you wouldn't think of. I'll list what I know about, but if anyone knows another product that you wouldn't directly digest that contains gluten, please add it. From what I know gluten is in:

- Glue

- Clay

- Playdough

- The side of the stamp that you lick

- The part of the envelop that you lick to seal

Any other weird places?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

I am a potter and I have never heard of gluten in clay! Though, I am talking about clay clay and not the little packets of modeling clay and such from the store. I always where gloves, eye protection, and a breathing mask when mixing the chemicals for glazes, though.

Play-doh is not say, don't play with it!

It is not in any glue I have used. . .maybe in some fancy brands? I do a lot of crafts and glue related projects, too.

Maybe I am wrong here, where are you getting your information?

Kayleen007 Rookie

Ok..from reading these posts I've found there are a lot of things to stay away from. Shampoos?? :o I'm new to all of this, so can someone point me to these lists you keep talking about that will ease the confusion as to what I can and can not eat or use or whatever. Something preferably that is as simply as don't eat bread, eggs, waffles, blah blah blah. And is it entirely necessary to also get rid of dairy? I'm just overwhelmed at what I'm finding I CAN'T eat..I don't have a single thing in my house that is gluten-free...and ugh..can't go to Taco Bell or Sonic. Okay..deep breaths. Anybody that can help with a list of do's and don'ts I would appreciate it.

joemoe003 Apprentice

You say you dont have ne thing to eat in the house, eat some fruit, cheese, make some gluten free cookies, vegetables if you think about it there is alot of stuff out there to eat. Go to the health food store and stock up on some gluten free food. I dont think you need to get rid of dariy if your not allergic to it. So if your not allergic i think your safe. and yes you need to check very thing your make up, shampoos, tooth paste yes things that you would never think of. I have read some of the lists and i have also been told that they are not always right so i think you would be better off if you would just read lables ore even call the company before you eat/ use them. and once you know that they are safe write it down in a journal so you dont forget. hope i helped some and if you would like to talk my msn sn is pippigirl32@hotmail.com feel free to IM me whenever.

Joe Moe

tarnalberry Community Regular

I'm sure you have plenty of things in your house that are gluten free.

Do you have any carrots? Bananas? Tomatoes? Apples? Oranges? Zucchini? Broccoli? Potatoes? Rice? Chicken? Eggs? Beef? Pork? Corn Tortillas (you do have to check the package, but lots of them are the basic corn, salt, lime recipe)?

Dairy is a call you have to make yourself. It's often useful to drop dairy for a bit at first, while you heal, but not all celiacs are casein sensitive or lactose intolerant. I can still have dairy (in fact, I used to be lactose intolerant, but I'm not any more - or don't appear to be). (I should add that if I have a gluten accident, I do lay off the dairy for a week or so until I feel better.)

I'm unaware of a single list that covers all the non-food items. It's a matter of reading lots of different things and getting it stored in your head. (I'm glad I'm a "simple" sort of person, who avoids most common health care products like makeup and specialty stuff. :-) )

Sorry I can't give you a specific list, but pretty much, if you come in contact with it, think about whether or not it has gluten (and that includes and non-gluten-free relatives who try to kiss you! ;-) )

lovegrov Collaborator

I never stopped eating dairy and never had a problem. Until you start getting this straighter in your head, stick with basic meat, veggies, fruit, eggs, cheese. That's what I did. And believe me, it becomes much easier to deal with. I don't even haul around lists any more.

richard

celiac3270 Collaborator

The nutritionist I recently went to works for an adult Celiac doctor. She said that if I use clay at school (I'm only 13) I shoud scrub my hands really well before eating something that my hands touch. She also said that Elmers glue is known to contain high levels of gluten. I just believed this to be true since she probably knows more about it than I do (I'm only 9 weeks on diet). Perhaps it is only certain types of clay; the kind I use at school comes from a large block, so it might be okay. I don't know, but I'm being careful anyway, just in case.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Evelyn's mom

This concerned me considering my daughter plays with Rose Art Clay and uses Elmers Glue almost daily. I looked on Elmers website where they state that it is made from only synthetic materials and in one of the FAQ they state that it is lactose free. I emailed both Elmers and Rose Art and will post their replies as soon as I get them.

RaeAnn

gf4life Enthusiast

If you get all the gluten out of your diet (and off your skin!) and still have some stomach issues, that is when you would need to try cutting out dairy for at least two weeks. If it makes a difference then it would be up to you if you cut dairy for more long term or just for a short amount of time. Most people are not truely "allergic" to milk, and the intolerance goes away after a while of being gluten-free. This will vary for everyone, for some it is a few weeks, others require anywhere from a few months to a few years. Hopefully it is not an issue for you. I am sensitive to casein right now and I miss cheese. There are so many gluten-free foods that I would love to have, but just don't taste the same without cheese! My kids would love to have some gluten-free ice cream, too. Maybe someday soon.

God bless,

Mariann

Kayleen007 Rookie

Thank you guys for answering. This really helps. I have one more question about reading labels (which is basically what I've been doing anyway to be safe). The obvious ones say wheat gluten or gluten. Is there anything else that I need to be looking for. Or if it doesn't say one of these two things does that mean I'm safe? I had found something yesterday (I can't remember what it was now) that I thought would have gluten in it, yet it didn't have either of those things in the list of ingredients..it also didn't say gluten-free. So...anything else I need to check in the ingredients before I chow down? And I know I've heard some people say things about processed foods..and that some cheeses are dusted with flour and can't be eaten...will these foods say gluten in the ingredients..and will the shampoos/soaps and such have gluten listed in the ingredients? Sheesh it's a lot to look for, lol. :unsure:

Cynthia

plantime Contributor

Other suspect ingredients are: barley, rye, malt flavorings, food starch, modified food starch, confectioners sugar, and yes, shredded cheeses. The starches are suspect only until you call the manufacturer to determine what kind of starch was used, and not all confectioners sugar and shredded cheese use wheat flour. Reading labels is an absolute must! If the confusion gives you a headache, just stick with meat, fruits, and veggies. Give yourself time for all of the information to sink in! Cosmetic and healthcare products usually will say something along the lines of wheat proteins. While they are not a problem for some, they cause severe problems for others!

Kayleen007 Rookie
Other suspect ingredients are: barley, rye, malt flavorings, food starch, modified food starch, confectioners sugar, and yes, shredded cheeses.

So, if it says these things on the ingredients label..I should stay away from that food, too right? Except the starch I can call the company and ask what type of starch. So..with the wheat thing in the shampoos and stuff..if in the ingredients the word wheat is used at all..even if it's not saying wheat gluten..does that mean I should stay away from that item as well?

jaimek Enthusiast

There is a list of safe and forbidden ingredients on this website that you can bring with you to the supermarket. I suggest you print them out. There are a lot more ingredients that you need to look for besides just "wheat." It gets a lot easier after the first couple weeks. Then you just know what you can and cannot have, and if you look through this website there are a lot of posts that will tell you which brands are safe for celiacs. Good luck. I was only diagnosed abou 3 months ago and it really isn't as bad as it seems (when you eat at home). Going out to eat is a different story, but at home there are TONS of foods you can have.

gf4life Enthusiast

https://www.celiac.com/st_main.html?p_catid...-21104477116.e7

click on this link and it will take you to the page with the lists you need. I agree that you should print them out. After a while you will know which ingredients you need to look out for. Anything that is questionable you should call the manufacturer.

It does get easier.

God bless,

Mariann

Guest Jessicasns17

I've heard that alot of cosmetics also contain gluten. Is this true? I've tried to contact different companies and haven't had any responses. I also understand that some lotions, soaps and bodywashes contain gluten too.

Guest Evelyn's mom
The nutritionist I recently went to works for an adult Celiac doctor.  She said that if I use clay at school (I'm only 13) I shoud scrub my hands really well before eating something that my hands touch.  She also said that Elmers glue is known to contain high levels of gluten.  I just believed this to be true since she probably knows more about it than I do (I'm only 9 weeks on diet). 

Here are the responses I received from Elmers regarding glue and RoseArt regarding their clay:

Elmers:

Thank you for contacting us regarding Elmer's Glue products.

All products are gluten free except for our brand of finger paints, as they

contain a wheat ingredient and should be avoided.

Sincerely,

Robert Thompson

Mgr. of Consumer Response and Technical Services

RoseArt:

Both our modeling clay and Fun Dough contain wheat flour.

Connie R-E Apprentice

Jessicasns17,

Yes, cosmetics, lotions, soaps and bodywashes can contain gluten, too!

You just have to read labels. Look for "Hydrolized Wheat Protien" and avoid it...

No matter what I used on my skin, I inadvertantly get some in my mouth at one time or another! :rolleyes: So, I steer clear of gluten in my bath products...

And, Lipsticks can contain gluten, too!

--For you boys out there:

Check your girlfriends lipsticks, lotions, and makeup before kissing!! ;)

It's everywhere!!!

Connie

celiacfreeman Contributor

burts bees cosmetics and lotions sent me a gluten free list

they have a web site to contact them

the baby bee lotion is excellent for adults AND gluten-free the carrot creme has gluten but there lip sticks don't

e-mail them for a list

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.