Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Foods, Shampoos, And Other No-no's


celiac3270

Recommended Posts

celiac3270 Collaborator

I've heard that there is gluten in a lot of places you wouldn't think of. I'll list what I know about, but if anyone knows another product that you wouldn't directly digest that contains gluten, please add it. From what I know gluten is in:

- Glue

- Clay

- Playdough

- The side of the stamp that you lick

- The part of the envelop that you lick to seal

Any other weird places?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

I am a potter and I have never heard of gluten in clay! Though, I am talking about clay clay and not the little packets of modeling clay and such from the store. I always where gloves, eye protection, and a breathing mask when mixing the chemicals for glazes, though.

Play-doh is not say, don't play with it!

It is not in any glue I have used. . .maybe in some fancy brands? I do a lot of crafts and glue related projects, too.

Maybe I am wrong here, where are you getting your information?

Kayleen007 Rookie

Ok..from reading these posts I've found there are a lot of things to stay away from. Shampoos?? :o I'm new to all of this, so can someone point me to these lists you keep talking about that will ease the confusion as to what I can and can not eat or use or whatever. Something preferably that is as simply as don't eat bread, eggs, waffles, blah blah blah. And is it entirely necessary to also get rid of dairy? I'm just overwhelmed at what I'm finding I CAN'T eat..I don't have a single thing in my house that is gluten-free...and ugh..can't go to Taco Bell or Sonic. Okay..deep breaths. Anybody that can help with a list of do's and don'ts I would appreciate it.

joemoe003 Apprentice

You say you dont have ne thing to eat in the house, eat some fruit, cheese, make some gluten free cookies, vegetables if you think about it there is alot of stuff out there to eat. Go to the health food store and stock up on some gluten free food. I dont think you need to get rid of dariy if your not allergic to it. So if your not allergic i think your safe. and yes you need to check very thing your make up, shampoos, tooth paste yes things that you would never think of. I have read some of the lists and i have also been told that they are not always right so i think you would be better off if you would just read lables ore even call the company before you eat/ use them. and once you know that they are safe write it down in a journal so you dont forget. hope i helped some and if you would like to talk my msn sn is pippigirl32@hotmail.com feel free to IM me whenever.

Joe Moe

tarnalberry Community Regular

I'm sure you have plenty of things in your house that are gluten free.

Do you have any carrots? Bananas? Tomatoes? Apples? Oranges? Zucchini? Broccoli? Potatoes? Rice? Chicken? Eggs? Beef? Pork? Corn Tortillas (you do have to check the package, but lots of them are the basic corn, salt, lime recipe)?

Dairy is a call you have to make yourself. It's often useful to drop dairy for a bit at first, while you heal, but not all celiacs are casein sensitive or lactose intolerant. I can still have dairy (in fact, I used to be lactose intolerant, but I'm not any more - or don't appear to be). (I should add that if I have a gluten accident, I do lay off the dairy for a week or so until I feel better.)

I'm unaware of a single list that covers all the non-food items. It's a matter of reading lots of different things and getting it stored in your head. (I'm glad I'm a "simple" sort of person, who avoids most common health care products like makeup and specialty stuff. :-) )

Sorry I can't give you a specific list, but pretty much, if you come in contact with it, think about whether or not it has gluten (and that includes and non-gluten-free relatives who try to kiss you! ;-) )

lovegrov Collaborator

I never stopped eating dairy and never had a problem. Until you start getting this straighter in your head, stick with basic meat, veggies, fruit, eggs, cheese. That's what I did. And believe me, it becomes much easier to deal with. I don't even haul around lists any more.

richard

celiac3270 Collaborator

The nutritionist I recently went to works for an adult Celiac doctor. She said that if I use clay at school (I'm only 13) I shoud scrub my hands really well before eating something that my hands touch. She also said that Elmers glue is known to contain high levels of gluten. I just believed this to be true since she probably knows more about it than I do (I'm only 9 weeks on diet). Perhaps it is only certain types of clay; the kind I use at school comes from a large block, so it might be okay. I don't know, but I'm being careful anyway, just in case.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Evelyn's mom

This concerned me considering my daughter plays with Rose Art Clay and uses Elmers Glue almost daily. I looked on Elmers website where they state that it is made from only synthetic materials and in one of the FAQ they state that it is lactose free. I emailed both Elmers and Rose Art and will post their replies as soon as I get them.

RaeAnn

gf4life Enthusiast

If you get all the gluten out of your diet (and off your skin!) and still have some stomach issues, that is when you would need to try cutting out dairy for at least two weeks. If it makes a difference then it would be up to you if you cut dairy for more long term or just for a short amount of time. Most people are not truely "allergic" to milk, and the intolerance goes away after a while of being gluten-free. This will vary for everyone, for some it is a few weeks, others require anywhere from a few months to a few years. Hopefully it is not an issue for you. I am sensitive to casein right now and I miss cheese. There are so many gluten-free foods that I would love to have, but just don't taste the same without cheese! My kids would love to have some gluten-free ice cream, too. Maybe someday soon.

God bless,

Mariann

Kayleen007 Rookie

Thank you guys for answering. This really helps. I have one more question about reading labels (which is basically what I've been doing anyway to be safe). The obvious ones say wheat gluten or gluten. Is there anything else that I need to be looking for. Or if it doesn't say one of these two things does that mean I'm safe? I had found something yesterday (I can't remember what it was now) that I thought would have gluten in it, yet it didn't have either of those things in the list of ingredients..it also didn't say gluten-free. So...anything else I need to check in the ingredients before I chow down? And I know I've heard some people say things about processed foods..and that some cheeses are dusted with flour and can't be eaten...will these foods say gluten in the ingredients..and will the shampoos/soaps and such have gluten listed in the ingredients? Sheesh it's a lot to look for, lol. :unsure:

Cynthia

plantime Contributor

Other suspect ingredients are: barley, rye, malt flavorings, food starch, modified food starch, confectioners sugar, and yes, shredded cheeses. The starches are suspect only until you call the manufacturer to determine what kind of starch was used, and not all confectioners sugar and shredded cheese use wheat flour. Reading labels is an absolute must! If the confusion gives you a headache, just stick with meat, fruits, and veggies. Give yourself time for all of the information to sink in! Cosmetic and healthcare products usually will say something along the lines of wheat proteins. While they are not a problem for some, they cause severe problems for others!

Kayleen007 Rookie
Other suspect ingredients are: barley, rye, malt flavorings, food starch, modified food starch, confectioners sugar, and yes, shredded cheeses.

So, if it says these things on the ingredients label..I should stay away from that food, too right? Except the starch I can call the company and ask what type of starch. So..with the wheat thing in the shampoos and stuff..if in the ingredients the word wheat is used at all..even if it's not saying wheat gluten..does that mean I should stay away from that item as well?

jaimek Enthusiast

There is a list of safe and forbidden ingredients on this website that you can bring with you to the supermarket. I suggest you print them out. There are a lot more ingredients that you need to look for besides just "wheat." It gets a lot easier after the first couple weeks. Then you just know what you can and cannot have, and if you look through this website there are a lot of posts that will tell you which brands are safe for celiacs. Good luck. I was only diagnosed abou 3 months ago and it really isn't as bad as it seems (when you eat at home). Going out to eat is a different story, but at home there are TONS of foods you can have.

gf4life Enthusiast

https://www.celiac.com/st_main.html?p_catid...-21104477116.e7

click on this link and it will take you to the page with the lists you need. I agree that you should print them out. After a while you will know which ingredients you need to look out for. Anything that is questionable you should call the manufacturer.

It does get easier.

God bless,

Mariann

Guest Jessicasns17

I've heard that alot of cosmetics also contain gluten. Is this true? I've tried to contact different companies and haven't had any responses. I also understand that some lotions, soaps and bodywashes contain gluten too.

Guest Evelyn's mom
The nutritionist I recently went to works for an adult Celiac doctor.  She said that if I use clay at school (I'm only 13) I shoud scrub my hands really well before eating something that my hands touch.  She also said that Elmers glue is known to contain high levels of gluten.  I just believed this to be true since she probably knows more about it than I do (I'm only 9 weeks on diet). 

Here are the responses I received from Elmers regarding glue and RoseArt regarding their clay:

Elmers:

Thank you for contacting us regarding Elmer's Glue products.

All products are gluten free except for our brand of finger paints, as they

contain a wheat ingredient and should be avoided.

Sincerely,

Robert Thompson

Mgr. of Consumer Response and Technical Services

RoseArt:

Both our modeling clay and Fun Dough contain wheat flour.

Connie R-E Apprentice

Jessicasns17,

Yes, cosmetics, lotions, soaps and bodywashes can contain gluten, too!

You just have to read labels. Look for "Hydrolized Wheat Protien" and avoid it...

No matter what I used on my skin, I inadvertantly get some in my mouth at one time or another! :rolleyes: So, I steer clear of gluten in my bath products...

And, Lipsticks can contain gluten, too!

--For you boys out there:

Check your girlfriends lipsticks, lotions, and makeup before kissing!! ;)

It's everywhere!!!

Connie

celiacfreeman Contributor

burts bees cosmetics and lotions sent me a gluten free list

they have a web site to contact them

the baby bee lotion is excellent for adults AND gluten-free the carrot creme has gluten but there lip sticks don't

e-mail them for a list

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fermented foods, Kefir, Kombucha?

    2. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,876
    • Most Online (within 30 mins)
      7,748

    pilber309
    Newest Member
    pilber309
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks
    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.