Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ugg, Hit The Dreaded "worse Before Better" Thing


dlp252

Recommended Posts

dlp252 Apprentice

I was hoping I would skip this part, lol. I've been seeing so many small improvements since going gluten/casein free, but for the past few days I have been very off-balance and feeling nauseated. I'm also having some problems with low blood pressure which produces a different kind of feeling--more like the blood is draining from my head type of thing.

I saw my regular GP yesterday, who basically just took my pulse and said the off-balance/nausea was probably related to inner ear/sinus problems. She prescribed something similar to dramamine for that and said I could take dramamine or the prescription. I had some Bonine (similar to dramamine) at home so took one of those yesterday afternoon, but ugh, still feeling nausea. I have an appointment with an ENT next week. (For the record, I don't get motion sickness usually or easily...can take the wildest of ocean cruises, air planes, car rides etc. with no ill affect--hard to believing sitting at my desk would produce motion sickness, but I'm no doctor, lol.)

She also said to monitor my blood pressure and to not move suddenly, get up quickly, and avoid standing or sitting for too long. Um, I'm going to Disneyland in about two weeks...it may involve some standing and sitting, lol. She didn't really say anything about it...course, she didn't have my chart in front of her either which would have shown YEARS of my "normal" BP readings...

I don't think this is related to being glutened although I have eaten out at Carl's Jr. (fries and a low carb burger) ...but then I do that every Saturday and have for months and haven't felt this way--I've even asked the manager if they have dedicated fryers at that location, which he said yes (course I guess I should be wary of the "deer in the headlight" look he gave me as I was asking). I don't feel like I'm coming down with anything either.

It's frustrating!

I guess I'm going to have to go back to bare basics for a while until my system calms down.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I was hoping I would skip this part, lol. I've been seeing so many small improvements since going gluten/casein free, but for the past few days I have been very off-balance and feeling nauseated. I'm also having some problems with low blood pressure which produces a different kind of feeling--more like the blood is draining from my head type of thing.

I saw my regular GP yesterday, who basically just took my pulse and said the off-balance/nausea was probably related to inner ear/sinus problems. She prescribed something similar to dramamine for that and said I could take dramamine or the prescription. I had some Bonine (similar to dramamine) at home so took one of those yesterday afternoon, but ugh, still feeling nausea. I have an appointment with an ENT next week. (For the record, I don't get motion sickness usually or easily...can take the wildest of ocean cruises, air planes, car rides etc. with no ill affect--hard to believing sitting at my desk would produce motion sickness, but I'm no doctor, lol.)

She also said to monitor my blood pressure and to not move suddenly, get up quickly, and avoid standing or sitting for too long. Um, I'm going to Disneyland in about two weeks...it may involve some standing and sitting, lol. She didn't really say anything about it...course, she didn't have my chart in front of her either which would have shown YEARS of my "normal" BP readings...

I don't think this is related to being glutened although I have eaten out at Carl's Jr. (fries and a low carb burger) ...but then I do that every Saturday and have for months and haven't felt this way--I've even asked the manager if they have dedicated fryers at that location, which he said yes (course I guess I should be wary of the "deer in the headlight" look he gave me as I was asking). I don't feel like I'm coming down with anything either.

It's frustrating!

I guess I'm going to have to go back to bare basics for a while until my system calms down.

The effects you are describing are the same first effects I get from being glutened. Be careful and check your OTC meds for gluten binders. It may well be from the Carl's trip, having worked in the restaurant business for years I will say if they had someone new they may have made a mistake with the fryer, and while these fryers (contrary to popular opinion) are changed daily in most places that doesn't mean an 'accident' didn't happen. Also an employee may have put you burger on a bun and then taken it off. I hope you get some relief soon, if it was gluten it will pass as long as you are not reinjesting. You have checked all your cosmetics, toiletries etc. and changed toasters also, right?

dlp252 Apprentice

Thank you! Yes, I have a new toaster oven. I don't use makeup everyday, just on weekends and then use Bare Minerals, except for mascara which is Maybelline and a lip liner which is Mary Kay...hum, maybe I need a new lip liner. I've been using Gluten-Free Sav. soap and alternate their shampoo/conditioner with a huge bottle of Bumble & Bumble that I'm trying to use up. The Bumble & Bumble ingredients look okay, but of I don't know about cross-contamination. I've checked the ingredients on most of the products I use as toiletries, and most look okay. I take Zyrtek, and haven't checked that yet, and I did just start taking it again a week ago. All my vitamins are gluten-free/casein-free and in fact don't contain any of the top 8 allergins now that I think about it. I also don't have the box anymore for the Bonine I took, but I've had the symptoms before yesterday.

I'm thinking it may very well have been the Carl's Jr. Arg...we just have to be such detectives.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,151
    • Most Online (within 30 mins)
      7,748

    Travis25
    Newest Member
    Travis25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.