Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will Resticting Gluten From A Non-sensitive Child Make Them Sensitive?


e&j0304

Recommended Posts

e&j0304 Enthusiast

First, I have been trying to do some research on this, but haven't gotten far. My son has not shown any response to gluten either through enterolabs stool test, blood tests, or biopsy. He does however, have one of the main genes that predisposes to celiac. If we keep him gluten free for years while he's young, will he be more likely or less likely to have a problem with gluten when he's older? Like for instance if he eats a cookie for a treat in preschool or something? I realize there probably haven't been many studies on something like that so I'm probably not going to find too much info, but just wanted to see what others thought.

Also, 2 days ago Ell had what I think was a reaction to gluten and it was her strangest one yet! I did catch her eating regular cereal off the floor that someone dropped and I don't think it was more than a couple of pieces. So for the next day and a half or so she periodically screamed about her tummy hurting and saying, "You have to help me! My tummy hurts!" She would be that way for a little while and then she would be down playing and seem totally fine. This went on, off and on, all day. She did also develop a slight fever that night and it only lasted a couple of hours and went away without medication and never came back. Her stomach looked VERY bloated and swollen. It almost looked painful. Usually when Ella has a reaction (and I guess I don't know what "usually" is because she's only had a few) they have lasted several days and included diarrhea and constant complaints of not feeling well. This one did not include diarrhea. Only stomach cramps. She was also up screaming in the night several times.

Just wondering if I can expect every time to be different. It makes me always wonder if it's gluten or if it's just a stomach bug or something. It's so hard to tell!

thanks for any insight.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Merika Contributor

Hi,

There hasn't been any research specifically on this, I don't think. But if someone doesn't have a problem with gluten, whether they eat it or not, and when, shouldn't matter. So if your son doesn't have a gluten problem and he doesn't eat it for a while, it shouldn't matter when he starts.

The ONLY blip in this is some evidence that if is INITIALLY introduced to gluten WHILE BREASTFEEDING his potential bad reaction to gluten will be delayed or reduced. (They don't know which yet.)

But if you have gluten problems in the family, I wouldn't risk it and would just keep him off gluten until he's older (like 5) and you can run a proper gluten eating challenge for like 6 months.

As for Ella (so glad she is doing better these days!) if you saw her eat the cereal, that was probably the culprit. Symptoms could vary as she heals, or by age, or by product, or.....

Hope she's feeling better soon,

Merika

e&j0304 Enthusiast

Thanks for your response, Merika.

I with there was more research out on this because I find it really interesting. Probably just because I have one child with a proven sensitivity and one without, so I'm curious!

Thanks for thinking of Ella. She is feeling better and overall is doing SO well. We have a totally different child now and it's such a blessing. It's my mission in life to educate everyone around me about our situation with Ella in the hopes that they can pass on the info to another family who is struggling so they don't have to go through as much as we did to find our answer. Ella is thriving and growing like a weed. Although she lost a lot of hair, it's growing back in and hopefully by the time she starts kindergarten it will look totally normal again.

Anyway, thanks for the response and I hope you're doing well too!

chrissy Collaborator

shannon---i did read something about restricting gluten in a person that might have an undiagnosed problem with it. i can't remember it exactly, but i will try and find it again.

christine

  • 2 weeks later...
TCA Contributor

I am nursing my daughter and she gets soooo sick if I eat gluten. i also read about introducing gluten via breastfeeding is good, so I'm in a catch 22. Please let me know if you find any conclusive articles!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.